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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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07-06-2013, 06:57 AM
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| "Thanks for this!" says: | Vrae (07-08-2013) |
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07-06-2013, 01:24 PM
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Cheers. its kind of strange watching a news piece on CRPS.
 I wont say that I see CRPS the way it was reported, But how can they tell it how it is unless they have had it. Now im off to convince my brain....... Also that second girl looked like a zombie. I felt for her, she looked zonked out on meds. I wouldnt wish this on any child. |
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07-07-2013, 01:53 AM
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Kim Is there any chance you can join us for the Debate Tues 9th 4.30PM Westminster Hall. Hope wecan meet with Mp's and some Press afterwardds and make them aware of just how bad this is.
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07-08-2013, 03:25 AM
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This is hard enough to deal with as an adult, I can’t even imagine what it is like to be a young girl/boy growing up with this. Or to be a parent of a child with CRPS. What a helpless feeling for a parent.
What is it they say in Hollywood, any press is good press. I’m glad to see that it’s being reported on, but the segment, IMO, falls short of grabbing the viewer and holding their attention with the devastating aspects. I agree, the second gal looked VERY sleep deprived for sure. |
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07-14-2013, 09:25 AM
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An odd little piece, strange to hear the UK voiceover but the clear US nature of it, like we can't be bothered to find our own sufferers and document their problems with the condition
 The second girl looked like she hadn't slept in months, poor thing. At least adults kind of understand what's happening, to a child it must be even more confusing and distressing... Brams
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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