new and confused
 

I am new here and was just told yesterday that I have nerve damage in my feet
This started sbout 90 days ago. I am now at times having aches in thighs and tingle or crawling feeling in and under chin( I did tell doctor all this) but got no comment. He drew blood to check on 1 certain protein. Boosted neurotin to 1800 mg a day.
I read too much on net and now I am upset.
Question 1 whst protein he looking for snd why.2. Just need someone to talk with who has similar issues who can guide me. :(

There are autoimmune antibodies that circulate in the blood.
Some of them can be measured.

There are also markers for certain cancers. Some cancers cause
neuropathy symptoms. This is called paraneoplasia.

So when you get the results get copies of it, and then we can try and explain more fully. Glenntaj here is our testing expert, and he knows far more about this subject than I do. He has had umpteen tests over the years, and understands them very well.

But there are over 100 causes of neuropathy. Some doctors don't test for them all.

Here is an example of Dr. Latov's LONG list...he is an expert in NY.

https://www.questdiagnostics.com/tes...ripheralNeurop

Thanks
 

Mrs. D
I appreciate the reply. I have extensive blood work done rvery 3 months results are 8 paged long. Dr. never mentioned any cancer he checks cancer markers no red flags.
I am being treated at Baylor medical bin Dallas

Hi
 

Try not to freak out. This can be a long process with little results. Sometimes when we first get symptoms it can be frightening. Sometimes they calm down. since my condition started about 3 years ago I have had all kinds of pains and sensations in almost every part of my body. Be aware of it and continue your journey but doctors no little about nerve damage in my opinion. I wish you well.

trying to learn
 

Hi still fighting
Thanks I for input.Yes I am having all types of weird feelings like now my lips are dry and cracking and pain in jaw joint under my ear just started today wondering if it connected to PN
Makes me worried that it hitting my jaw. But it could be dental issue with my denture.I have only had PN about 4 months just saw neurologist for first time this week.