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-   -   a little bit crazy alot ticked off (https://www.neurotalk.org/multiple-sclerosis/197934-little-bit-crazy-alot-ticked.html)

jnewk 12-01-2013 12:54 PM

a little bit crazy alot ticked off
 
hey everyone! I wonder if you could give me your thoughts on my current situation. I had a seizure a few weeks ago. I bumped my head, scraped my knee. I was sick sick when I came to. Crawled to toilet which was thankfully not too far away. Wretched like never before for a good while. Completely weak and sickly feeling. Coincidentally my niece came to my house while I was wretching and when I could get to my feet she helped to go get to my bed which is also fairly near (small apt).

I was loopy as heck the next day with a nice bump on forehead and cheekbone. The day after i still felt that way so I called neuro. They called back the next day. I am sure the residual confusion and emotional state I was in was due to a mild concussion. Neuro didn't want cat scan. So I called primary and he ordered one. I haven't heard yet what it showed. She put me on keppra and that stuff sent me through the roof.

[In the meantime, I get a letter from dmv. 3 months I guess until otherwise stated.]

I went completely manic/crazy and confused. It was the worse experience. I have never had anything like that happen before. And it lasted for days. So I called back, off Keppra. Days pass. I finally see neuro. She puts me on lamictal. I honestly thought all these "brain drugs" were making me insane.

However, in the meantime, my neuro had not seen me or spoken with me on phone. But her bimbo secretary did. We made apt for about a week later. by that time although I was still pretty manicky I was not confused, or woozy or anything. just a bit ticked off.

anyway, I would have appreciated at least speaking to her or waiting until my appointment for her to do that. I know its her license and liability. however, a direct conversation with me shouldn't have been too much to ask.

Obviously I am not dealing with this. I'm really ****** at them. I don't want to tell them a darn thing again. It will cost me more money in ins, transportation, etc. And my soc sec is under poverty level,. its high enough that I get denied for any of the "freebies" (no offense anyone) that are available to disabled people. And I'm broke. I don't even get through the month. I don't live much of a lifestyle. TV, grocery store, small errands. And now my world is even smaller. I realize there are many of you out there that are in worse situations, and I shouldn't complain. But sometimes we just have to have somewhere to share this kind of stuff. So I am thankful to you all (if by the time you've gotten this far into my post that your eyes haven't glazed over lol)

My life is diminishing...getting so much smaller and isolated. I am about to give up and just not care. Honestly, I went to this neuro with an open mind and willing to give her plan a try but so far I've had 3 meds that contradicted with my heart meds causing an apparent a seizure, and lost my DL. So far this place has done nothing but make my life worse. So in three months when she can sign the effing form to dmv. I'm done with them. Again. Done with "ms" drugs, and I'm done with being a human test tube.

Thanks for letting me rant.
janet

clarkstar 12-01-2013 01:03 PM

sorry youre going through this. its good to vent, this is a good place to do it :hug:

hang in there

SallyC 12-01-2013 01:37 PM

(((((Janet))))), what an airhead nimrod of a Neuro, you have..:mad:. I'm so
glad your Niece was there at the right time to be of help to you. I don't
suppose Vegas is the place for top notch Docs, unless they're retired..:rolleyes:

I hear you and you have every right to complain. I will pray that
things ease up for you soon. You deserve a break!!

Feel better soon..:hug:

Kitty 12-01-2013 02:27 PM

I had to stop driving a few years ago.....but I did it on my own. Nobody told me or made me stop. In fact, I still have my driver's license but just keep it for identification purposes.

It's hard to stop driving. It was definitely an adjustment for me. But, my income has more than been cut in half so not having to make a car payment or insurance payment is really the only way I can make it through a month.

The doctor should have told you that she contacted the DMV. That's just common courtesy. Sorry you had to find out the way you did.

tkrik 12-01-2013 03:20 PM

I'm so sorry this is happening to you.:hug:

Did you actually see the neuro at all or was everything done over the phone? IMHO, they should have done some testing such and an EEG to make sure that it was truly a seizure and not something else. Granted, from your description it sounds as if it may have been but still.... And, she contacted the DMV without concrete proof (such as an EEG) that you even had a seizure. Nor did she investigate the reasoning behind it, such as what you mentioned - medication interactions. She didn't discuss contacting the DMV with you and by that she has impacted your quality of life. I think finding a new neuro may be a good idea if you are able to do so.

I have had absence seizures before and the neuro didn't contact DMV. I was told to avoid driving for 6 months to make sure no more seizure activity occurred. If it did, then they would have to contact the DMV. I guess I was lucky that they didn't contact them.

I am glad your niece happened to come by and help you. I hope you start feeling better soon. Let us know the results of your CT scan and how you are doing.:hug:

Sparky10 12-01-2013 09:50 PM

I'm sorry all this happened to you, Janet. Hope you get to feeling better soon. :)

So, all these medical professionals are taking you at your word that you had a seizure and a concussion? That seems odd. And wrong. Is it standard procedure for people who have experienced a seizure, or simply said they did, to be reported to the DMV? :confused:

NurseNancy 12-01-2013 10:14 PM

i'm sorry you're going thru all this.
your "neuro" should have done some tests to substantiate that you really did have a seizure, and didn't have a head injury. maybe and eeg or something.

use the ensuing time just to get her release for the dmv. then dump her.
she's awful. and, please go to the er if anything like that happens to you again.

please stay with us and keep us posted on how you are.
we're here for you.

jnewk 12-02-2013 10:36 AM

Quote:

Originally Posted by SallyC (Post 1033381)
(((((Janet))))), what an airhead nimrod of a Neuro, you have..:mad:. I'm so
glad your Niece was there at the right time to be of help to you. I don't
suppose Vegas is the place for top notch Docs, unless they're retired..:rolleyes:

I hear you and you have every right to complain. I will pray that
things ease up for you soon. You deserve a break!!

Feel better soon..:hug:

Thank you Sally. And you are right....the good docs are retired or close to it. My cardio is getting close to that and I'm not looking forward to finding another one.

Thanks for your understanding and compassion. It HELPS!

jnewk 12-02-2013 10:39 AM

Quote:

Originally Posted by Kitty (Post 1033390)
I had to stop driving a few years ago.....but I did it on my own. Nobody told me or made me stop. In fact, I still have my driver's license but just keep it for identification purposes.

It's hard to stop driving. It was definitely an adjustment for me. But, my income has more than been cut in half so not having to make a car payment or insurance payment is really the only way I can make it through a month.

The doctor should have told you that she contacted the DMV. That's just common courtesy. Sorry you had to find out the way you did.

yes Kitty...I have already given up driving at night because off "night blindness" but I know when I am able to get myself to the market or where ever. I've lost 3 members of my family to (2) different drivers that were impaired. I would never put anyone through that by driving impaired.

It is what it is at this point I guess I just have to accept it and wait it out. Then, 3 mos and I'm done with Lou Ruvo Center

jnewk 12-02-2013 10:41 AM

Quote:

Originally Posted by Sparky10 (Post 1033486)
I'm sorry all this happened to you, Janet. Hope you get to feeling better soon. :)

So, all these medical professionals are taking you at your word that you had a seizure and a concussion? That seems odd. And wrong. Is it standard procedure for people who have experienced a seizure, or simply said they did, to be reported to the DMV? :confused:

Nevada is a "must report" state. And I'm certain Dr did it to protect her license. She did make that decision with no tests. Just a message from me thru her assistant that I'd fainted or seized and thought I had a concussion. She did not want to order a cat scan so that is when I called primary. But by that time 1 1/2 weeks had gone by. I have to call primary dr today and see what he says.

Thanks for your questions and concern.


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