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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   pain (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/198655-pain.html)

moosey2me 12-15-2013 11:25 AM

pain
 
Woke up this morning to about 11 inches of new snow..I am so sad because both legs hurt today.I usually have rsd in my right hip to my foot.I. had a melt down already with the pain.its terrible.hurts to walk so I guess I will not be doing that..left feels just like the right-crying a lot today.sorry to lay this all out,but I have been having signs it is going into my other leg,but I did not want to face it...I hate this..hope you all are doing okay..what's your weather

Vrae 12-15-2013 11:55 AM

Quote:

Originally Posted by moosey2me (Post 1037188)
Woke up this morning to about 11 inches of new snow..I am so sad because both legs hurt today.I usually have rsd in my right hip to my foot.I. had a melt down already with the pain.its terrible.hurts to walk so I guess I will not be doing that..left feels just like the right-crying a lot today.sorry to lay this all out,but I have been having signs it is going into my other leg,but I did not want to face it...I hate this..hope you all are doing okay..what's your weather

Awe Moosey…. I’m so sorry. I saw on the news that you all are getting just hammered with snow. :eek: I’m sure all that weather and perhaps stress from time of year is definitely not helping.

I got on here just now because I too am welling up with tears due to pain. I have had to get real aggressive today with meds, and that sucks (side effects). I had planned to try and finish up some shopping. Looks like that won’t be happening. Instead I am stuck in bed trying not to move.. breathe. Ug!

I have been very symptomatic lately with all things CRPS II, and bonus, my lower back has decided to get in on the action. The muscle spasms I experience with CRPS (mostly in my legs), when bad, seem to make its way to my lower back. It’s miserable for sure.

Again I’m so sorry that you’re hurting so bad. I hope you get relief soon! :hug:

moosey2me 12-15-2013 12:59 PM

pain no fun
 
Quote:

Originally Posted by Vrae (Post 1037196)
Awe Moosey…. I’m so sorry. I saw on the news that you all are getting just hammered with snow. :eek: I’m sure all that weather and perhaps stress from time of year is definitely not helping.

I got on here just now because I too am welling up with tears due to pain. I have had to get real aggressive today with meds, and that sucks (side effects). I had planned to try and finish up some shopping. Looks like that won’t be happening. Instead I am stuck in bed trying not to move.. breathe. Ug!

I have been very symptomatic lately with all things CRPS II, and bonus, my lower back has decided to get in on the action. The muscle spasms I experience with CRPS (mostly in my legs), when bad, seem to make its way to my lower back. It’s miserable for sure.

Again I’m so sorry that you’re hurting so bad. I hope you get relief soon! :hug:

I am sorry to hear you are so well either.I have so much to do,but hurts to walk..hope is all I can think of right now..best wishes to you

Vrae 12-15-2013 02:00 PM

Quote:

Originally Posted by moosey2me (Post 1037213)
I am sorry to hear you are so well either.I have so much to do,but hurts to walk..hope is all I can think of right now..best wishes to you

I hear ya on the to do list. I just sent my husband off with a good deal of the list that was to be accomplished by both of us today. He seemed genuinely annoyed which is unusual for him, but he's human and I know it irritates both of us. <sigh>

AZ-Di 12-15-2013 03:40 PM

Vrae & Moosey,'
please try warm up and feel better!!
Please don't hate me because I would send you some buckets of warm sunshine if only I could !! I'm in a suburb outside of Phoenix, AZ.
Come on now, some meditation....feel the warm sun soaking into your limbs...
The only downside is you wouldn't want to be here in summer.

VRae, I remember someone had to remind me when i was down and crying about
needing help. "They're frustrated at the CRPS not at you".

Vrae 12-15-2013 04:26 PM

Quote:

Originally Posted by AZ-Di (Post 1037251)
Vrae & Moosey,'
please try warm up and feel better!!
Please don't hate me because I would send you some buckets of warm sunshine if only I could !! I'm in a suburb outside of Phoenix, AZ.
Come on now, some meditation....feel the warm sun soaking into your limbs...
The only downside is you wouldn't want to be here in summer.

VRae, I remember someone had to remind me when i was down and crying about
needing help. "They're frustrated at the CRPS not at you".

That is an excellent thing to remember! Thank you.
He's out shopping, bless his heart, and texting me pictures and calling and well... we're getting it done. Really... he's getting it done. Thank goodness!

My drugs have kicked in and taken the edge off for now, but I have taken up residence in my bed today. This morning was bad. Anywho, I'd take some Az sunshine for sure! But I lived in West Texas for a decade and you can keep those ridiculously HOT summer temps! Just like I am sure no one wants the cold. :)

heatherg23 12-15-2013 05:11 PM

Quote:

Originally Posted by moosey2me (Post 1037188)
Woke up this morning to about 11 inches of new snow..I am so sad because both legs hurt today.I usually have rsd in my right hip to my foot.I. had a melt down already with the pain.its terrible.hurts to walk so I guess I will not be doing that..left feels just like the right-crying a lot today.sorry to lay this all out,but I have been having signs it is going into my other leg,but I did not want to face it...I hate this..hope you all are doing okay..what's your weather

It's good to lay it all out....Sorry your pain is so intense. You must live in the east. I'm in Wisc and only got a couple inches. 11 inches of snow doesn't make it easy for people with RSD. Stay inside and stay nice and warm! It's bitter cold out there. It's one of the worst things for us and our pain.

I really really really hope you feel better soon!!:hug:
Heather

Brambledog 12-15-2013 05:21 PM

Hey Moosey :) and Vrae and everyone else feeling the cold and wondering when they will next soak up any warmth from the sun...

It's bitter and miserable here in the uk too...not cold today, it's got milder, but we've exchanged the cold for damp and windy unsettled weather....gets right into my bones and everything is worse :rolleyes:

Wouldn't it be fab if there was some ideal country where we could live, in permanent calm settled weather, warm (but not hot lol), with fluffy clouds in a blue sky and an excellent health care system that was free for everyone and had plenty of CRPS experts...not to mention an excellent benefits system and jobs to suit those of us that want them but struggle to fit into a 'normal' job....

Ah, now there's a dream....:winky:

Hang on in there you wonderful folk, the sun will return and we will feel warm again :p

Bram :grouphug:

murgir 12-15-2013 05:35 PM

Quote:

Originally Posted by Vrae (Post 1037262)
That is an excellent thing to remember! Thank you.
He's out shopping, bless his heart, and texting me pictures and calling and well... we're getting it done. Really... he's getting it done. Thank goodness!

My drugs have kicked in and taken the edge off for now, but I have taken up residence in my bed today. This morning was bad. Anywho, I'd take some Az sunshine for sure! But I lived in West Texas for a decade and you can keep those ridiculously HOT summer temps! Just like I am sure no one wants the cold. :)

Which meds take the edge off? I had bad pain Friday night and was only given ibuprofen 600mg and take 900mg of Neurontin a day. I go back to my neurologist tomorrow for him to order a MRI and either bone scan or done density test. Maybe get an ideal on meds that will at least take the edge off too.

moosey2me 12-15-2013 06:55 PM

thank you
 
Thank you all..I am still in bed.Have to work tomorrow..I already feel like saying you have to be kidding me!!!!Today has been terrible..But thank you all for your messages..Just seeing them makes me feel I am not alone...


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