NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   Some interesting information (https://www.neurotalk.org/myasthenia-gravis/204055-information.html)

rach73 05-04-2014 03:18 AM

Some interesting information
 
Hi,

over the years I have posted on this site about dysautonomia and the link with autoimmune diseases. Many of you have commented in the past about having low blood pressure / palpitations / tachycardia.

http://http://www.dysautonomiaintern...age.php?ID=180

This link from Dysautonomia International has some interesting information especially points 3 and 4.

I hope that if you are having the symptoms of PoTS (a type of dysautonomia) you find the link useful.

Rach x

rach73 05-04-2014 03:20 AM

This link explains more about dysautonomia
http://http://www.dysautonomiaintern...page.php?ID=34

AnnieB3 05-05-2014 12:10 AM

Thanks, Rach. There are so many "overlap" diseases, and so many people who have more than one thing going on.

I'm sorry you have had to go through so much. I would not want to have POTS. I can't imagine getting sick every time I went to sit or stand up!

BTW, guys, Rach writes in her blog in a way I wish I could. A couple of her latest posts on illness are exceptional.

:hug:
Annie

rach73 05-05-2014 03:42 AM

Hi Annie,

Thank you for your lovely comments.

I had a lady contact me yesterday through my wordpress version of my blog
http://www.themyastheniakid.com she lives in Australia and one of her children has symptoms that are very similar to mine. Apart from the fact her son was born with ptosis. I have left a comment saying it sounded it sounded like a type of CMS ( I would never have known about CMS with out you!) and gave her the link to this forum.

I really hope she joins up and can get some help with trying to find the answers for her son.

Thanks again for such kind words about my blog.

Rachx


All times are GMT -5. The time now is 03:04 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.