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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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05-04-2014, 03:18 AM
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Member
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Hi,
over the years I have posted on this site about dysautonomia and the link with autoimmune diseases. Many of you have commented in the past about having low blood pressure / palpitations / tachycardia. http://http://www.dysautonomiaintern...age.php?ID=180 This link from Dysautonomia International has some interesting information especially points 3 and 4. I hope that if you are having the symptoms of PoTS (a type of dysautonomia) you find the link useful. Rach x
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Diagnosed with: Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa And Myasthenia is still a possible diagnosis depending on which Dr I see. My blog address is . . Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can, And the wisdom to hideThe bodies of Doctors I shot When they said,"You're perfectly healthy, It's All In Your Head." |
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05-04-2014, 03:20 AM
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Member
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This link explains more about dysautonomia
http://http://www.dysautonomiaintern...page.php?ID=34
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Diagnosed with: Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa And Myasthenia is still a possible diagnosis depending on which Dr I see. My blog address is . . Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can, And the wisdom to hideThe bodies of Doctors I shot When they said,"You're perfectly healthy, It's All In Your Head." |
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| "Thanks for this!" says: | cait24 (05-04-2014) |
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05-05-2014, 12:10 AM
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Grand Magnate
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Thanks, Rach. There are so many "overlap" diseases, and so many people who have more than one thing going on.
I'm sorry you have had to go through so much. I would not want to have POTS. I can't imagine getting sick every time I went to sit or stand up! BTW, guys, Rach writes in her blog in a way I wish I could. A couple of her latest posts on illness are exceptional.  Annie |
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| "Thanks for this!" says: | rach73 (05-05-2014) |
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05-05-2014, 03:42 AM
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Hi Annie,
Thank you for your lovely comments. I had a lady contact me yesterday through my wordpress version of my blog http://www.themyastheniakid.com she lives in Australia and one of her children has symptoms that are very similar to mine. Apart from the fact her son was born with ptosis. I have left a comment saying it sounded it sounded like a type of CMS ( I would never have known about CMS with out you!) and gave her the link to this forum. I really hope she joins up and can get some help with trying to find the answers for her son. Thanks again for such kind words about my blog. Rachx
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Diagnosed with: Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa And Myasthenia is still a possible diagnosis depending on which Dr I see. My blog address is . . Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can, And the wisdom to hideThe bodies of Doctors I shot When they said,"You're perfectly healthy, It's All In Your Head." |
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| "Thanks for this!" says: | AnnieB3 (05-05-2014) |
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