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-   -   Another confusing diagnosis for why my nervous system is under attack (https://www.neurotalk.org/peripheral-neuropathy/217737-confusing-diagnosis-nervous-system-attack.html)

Healthgirl 03-21-2015 02:26 PM

Another confusing diagnosis for why my nervous system is under attack
 
First my diagnosis was cervical herniated discs (c5-6-7), then it was fibro, then they finally discovered the small fiber neuropathy all over my body and autonomic dysfunction. Now I received the call yesterday that my lip biopsy came back borderline. I asked what that means. My neuro said that it means that it shows inflammation that is indicative of sjogrens.

I don't even have a dry mouth??
It's quite obvious to me that an inflammatory process is going on in my body, but why would that mean sjogrens? I know there is some kind of possible virus, bacteria, parasite, my own haywire cells attacking themselves (most likely because of the very high ANA that skyrocketed in my most acute phase).... and I am glad that this might help in the direction in what treatments might work, but Plaquenil is what she feels is the absolute safest way to start and that really freaks me out.

jenng 03-21-2015 02:44 PM

Before you start Plaquenil, you may want to make sure they run the SSA-SSB antibodies that are specific for Sjogren's & maybe do a Schirmer's eye test that checks your tear production. Plaquenil can cause PN unfortunately, many drugs to treat autoimmune disorders can have untoward side effects. I was thought to have this earlier on in my PN journey & took Plaquenil for about 7 yrs, my bloodwork & other testing was negative so I stopped taking it.


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