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Old 03-21-2015, 02:26 PM #1
Healthgirl Healthgirl is offline
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Healthgirl Healthgirl is offline
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Default Another confusing diagnosis for why my nervous system is under attack

First my diagnosis was cervical herniated discs (c5-6-7), then it was fibro, then they finally discovered the small fiber neuropathy all over my body and autonomic dysfunction. Now I received the call yesterday that my lip biopsy came back borderline. I asked what that means. My neuro said that it means that it shows inflammation that is indicative of sjogrens.

I don't even have a dry mouth??
It's quite obvious to me that an inflammatory process is going on in my body, but why would that mean sjogrens? I know there is some kind of possible virus, bacteria, parasite, my own haywire cells attacking themselves (most likely because of the very high ANA that skyrocketed in my most acute phase).... and I am glad that this might help in the direction in what treatments might work, but Plaquenil is what she feels is the absolute safest way to start and that really freaks me out.
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Old 03-21-2015, 02:44 PM #2
jenng jenng is offline
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jenng jenng is offline
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Before you start Plaquenil, you may want to make sure they run the SSA-SSB antibodies that are specific for Sjogren's & maybe do a Schirmer's eye test that checks your tear production. Plaquenil can cause PN unfortunately, many drugs to treat autoimmune disorders can have untoward side effects. I was thought to have this earlier on in my PN journey & took Plaquenil for about 7 yrs, my bloodwork & other testing was negative so I stopped taking it.
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Idiopathic Sensorimotor Polyneuropathy
Atypical Migraine
Chiari 1 malformation 7 mm
PLIF L5-S1 Sept. 2013

Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis.
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