Rytary: 9 weeks in. Who is still taking?
This week makes my 9th week on Rytary. Took 4 weeks to get some complications worked out: Not Sleeping, increase in restless leg, left foot dystonia pain. Working with my MDS, he upped my dose from 3 95Mg caps 3 times a day to 4 95's. Been on that regiment for a month. Much improved, sleep better, on times lasting 6 to 7 hrs and improved dystonic symptoms. Appears that it takes longer to kick in. I hear patients having big time issues if taken to close to protein intake. Any one else having success?
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YOU get consistant 6-7hrs of ON time with no OFFS? Are you taking only RYTARY?
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i'm making a big deal about this because when i was 4 years into my diagnosis i had no major "OFF" times on 3-4 sinemet/day. RYTARY is a major expense for some people who are desperate for a better solution so this isn't a trivial discussion imho. if you went from 3-4 sinemet a day to RYTARY that is quite different from going from 10+/day with many OFF times. what was your sinemet strength and dosing if i may ask before RYTARY? Did you try sinemet cr? |
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So Helpful
to have this feedback on Rytary. My husband has been on for approximately four months now and it is still a learning process...tweaking here and there...so desperate for it to work.
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Rytary update 10 weeks
I am on Rytary ER 48.75 MG-195 MG CAP. I take 9 a day. 3 @ 7AM ,11AM and 3PM. It kicks in at about 7:30AM and lasts until about 7PM. I supplement the 3 dosages with 1 25-100 Sinemet at 5:30AM and if I stay up past 7:30 PM I take 1 Sinemet every 1 and 1/2 hours. The co-pay is $40 per month.
Overall it is better than remembering to take Sinemet every 1 and 1/2 hours. It is very sensitive to a lot of foods and should be taken at least an hour before or after food. Often about 10% of the time it doesn't kick in fully. I believe I have more naseua with it. It is no wonder drug and a little better than Sinemet. |
Nausea/Vomiting with Rytary
I am new to this forum. So please excuse me if I make some mistakes. I have had PD for 13 years. I am taking about 10 Sinemet (carbidopa levodopa 25/100) per day. My neurologist switched me to Rytary at 245 MG times 3 TID (Total nine, 245 mg tabs per day). The 1st two days were okay. I thought this is great. Then I started getting sick (vomiting) at night after my evening dose at 6 PM. My doc lowered the dose to 195 mg 3 caps taken TID, and added carbadopa (lodosen) to prevent nausea.. The same thing happened to me. Got sick and vomiting, but at night only.
I remember when I started Sinemet I had a similar problem with nausea, but the doses were so low then, that I eventually got over it. I'm back on Sinemet that now. Any advice on the nausea and vomiting? Thank you very much for letting me be part of this form. |
larryst5,
Welcome to the forum. Rytary has the same components as Sinemet, levodopa and cabidopa, but it is packaged differently. So, I think the most likely cause of your nausea is the speed at which extra levodopa was introduced. You went from 1000mg per day of levodopa in the Sinemet to 2245mg levodopa per day in the Rotary. See FDA prescribing information for details of how to introduce Rytary. http://www.accessdata.fda.gov/drugsa...312s000lbl.pdf John |
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