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-   Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)
-   -   Hey, we have a spokesperson here!!!!! (https://www.neurotalk.org/peripheral-neuropathy/22311-hey-spokesperson.html)

SeamsLikeStitches 06-21-2007 05:24 PM

Hey, we have a spokesperson here!!!!!
 
http://abclocal.go.com/kgo/story?sec...t_7&id=5401293

It is a local person here in the San Francisco Bay area, but at least word is starting to get out.... I haven't read it all yet, I was so excited to see the announcement I had to get the link on here.

Actually, someone at work told me about it and I went to the page to check it out. I'm really busy but just went there and book marked it.
I'll read it later tonight, but want the rest of you to check it out too.

Terri

SeamsLikeStitches 06-21-2007 05:28 PM

Here is his foundation he started...
 
http://www.neuropathyactionfoundation.org/

cyclelops 06-21-2007 05:41 PM

That is good news. Local stuff goes national and even global...hooray.

Silverlady 06-21-2007 06:47 PM

Here's hoping!!
 
I hope he spreads this in every way possible. Thank you for posting it. By doing so, you have helped him spread it. Send it to your local newspapers, that will also help spread it. And I hope he continues to have the strength to spread his word.

Billye

MelodyL 06-21-2007 08:06 PM

I am extremely impressed. And if I lived there, I'd be there in a heartbeat.

What a terrific young man!!!! I do wish him well.

Melody

Alkymst 06-21-2007 08:27 PM

Most excellent news
 
I just visited the website and it seems to be quite good. I'll certainly forward the info on locally - maybe a grass roots like movement will get the kind of attention we all need and hope for.
Many thanks
Alkymst

rose 06-21-2007 08:45 PM

Terri,

Hi, neighbor. Sonoma County here.

rose

shiney sue 06-21-2007 08:52 PM

Grass Roots
 
I 've always liked that,and i'm glad you said it A,and i'm glad you
found this Terri. Thanks again,:) :) Sue

Brian 06-21-2007 09:20 PM

What a wonderfull find Terri, i sent them an email making them aware of this terrific Forum.

Silverlady 06-21-2007 10:00 PM

I'm posting elsewhere
 
I'll post it on to the Sjogren's forum too. There are a lot of letterwriters there I bet. Thanks again.

Billye


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