Twitching
 

Back in late February I was using a shiatsu machine. I had kicked off some twitching symptoms in my foot. Now I twitch all over. It doesn't hurt but it's so annoying. I wonder if someone with SFPN has generalised twitching as a symptom.

I know I have PN everywhere, but I also don't understand how the twitching happened all over body instead of just the foot where the shiatsu machine was applied. Meaning why does the twitching in the foot spread so fast to where now I get twitching everywhere. (not at the same time). I may have a twitch in the thigh then a twitch in the arm,then hand etc.

But it's global.And it's worse at night. I am on calcium/magnesium/potassium.

What else can I do? Is this still SF PN?

Thank you,

HI Aussie! I don't have SF PN......but gosh your symptoms sound awful! I can't imagine all the twitching......I have buzzing all over now and that's bad enough! I hope you find out something that will calm it down....or better yet.....make it go away! Best Wishes!

Fasciculations
 

Hi Aussie99,

I haven't as yet been diagnosed with a particular type of PN, although it is looking more and more like it may be SFPN (idiopathic).

Yes I have the twitching (fasciculations) all over just as you say..."here a calf, there a butt.....old MacDonald...." constantly flitting around. I'm sure they are there all day but I notice them when I am sitting quietly or lying down and particularly when I first wake in the mornings they are VERY pronounced then!!! They are not painful but nevertheless a totally new experience which started about five weeks ago. The onset of the fasciculations was several weeks after the onset of the constant burning/buzzing of PN so I'm sure they HAVE to be connected to the PN.

Perhaps it is a total coincidence that you developed the fasciculations after using the shiatsu machine! I think (and please correct me if I am wrong) that the fasciculations are part of the sensory-motor nerve involvement of PN. I have read (and again I may be wrong) that fasciculations may be the only symptom of motor involvement and there may be no further progression of motor damage/symptoms - which is good news if that is true.

Hi Megan
 

Your post made me laugh,and I appreciate it very much. It's exactly as you say. LOL!:D

Also thank you to those who sent me a PM, I appreciate it.

Im not sure what SF PN is but I have PN related to diabetes and I too twitch...A LOT somedays....not at all some days. Although it panicked me at first......I have learned to live with it as it is not painful for me, just annoying (and probably a source of humor to others when its going on ini my face!)

SF--
 

--just refers to "small fiber": those nerves that are sensory and/or autonomic and only lightly sheathed, or not at all sheated, in myelin (mostly the latter).

A "samll-fiber" neuropathy--very common for people suffering from vascultiis, autoimmune conditions, or diabetes/impaired glucose tolerance--is simply one in which those are predominantly involved. Since these nerves subsume the sensations of pain and temperature, small-fiber neuropathies typically result in nerve pain, numbness, and temperature disruption sensations.

are you still taking that beta blocker?
 

Beta blockers mask low blood sugar. Global twitching is found in 70% of patients with hypoglycemia.

Do you twitch more when hungry? (time intervals away from meals?)

I am a twitching machine! :rolleyes: You name it, if it's a body part containing a muscle, it has probably twitched uncontrollably at some point. The worst areas are below the knees in my calves and the arches of my feet.

fanfaire
:cool:

I too twitch all over. Two weekends ago I was twitching so bad that I was literally lifted off my bed from about 1/2-1". My whole body! It hurt, so I am not sure if this was a normal twitch or if my body went into some spasm. Usually the twitches don't hurt, just annoying. But when my whole body did that, it HURT! I guess it could have been a spasm, but I have never heard of a whole body spasm.

Has anyone else had something like this/or know of someone who does this? I have not been dx with PN as of yet. Could this be the result of PN?

Thank you for any suggestions/ideas/comments in advance.

M

Cannot speak for others here...
 

for me, it comes and goes...BUT I'm beginning to think it mite be connected with getting even a little bit de-hydrated. For me, that is. Try and make that sort of connection, and if it is...just glurg more water than you thot you ever needed for a few days and then find your 'balance'.
Can't hurt to try? - j

PS at times it can get bad - so bad that it wakes up the DH? Not often mind you, but it's at those times it hits home that what I've got 'ISN'T' normal.