Hi I'm new Member here
 

Hi Everyone,
How to make a long story short I have some sort of Neurological disease
I was dx with Lupus (SLE) in 1987 with steriod treatments through the years.
In 2000 I was taken in ER possible Stroke or MS
I've had a 2 band test on Spinal last one was negative... I have been
treated with MS meds since 2001 due to blood counts had to discontinue this past March.
In 2004 I was dx with Dysautonomia due to lesion on brain stem there is nothing to be done there the Neuro and Mayo said...
I just got back from 2wks at Mayo this week they say I dont have MS but Mixed Connective Tissue
Lupus, Sjogrens with complications of Dysautonomia.
I do have lesions on the brain and the Spine, the Lupus specialist says my Lupus isnt made enough to cause all the
CNS thats what the blood work says oh I also take Procrit injections when needed.
I have never been so mixed up could use advice support something I dont even know. I was due to start Tyasbri now I'm not.

Thank You for this Group,
Southern Blessings, Rita

Welcome Rita,
I hope you can find some help and ideas as you explore the forums.:grouphug:

Rita,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene:hug:

Rita,
This is my first time on the site. I have read a lot of good information. If you live in Indianapolis Indiana I lead a support group for the Sjogren's Foundation. Let me know if I can help.
Diana

Welcome Rita! Wow, you really have alot to deal with. I'm glad your'e here, as there's so much info and good people here to help.

Hang w/us and welcome again! :welcome_sign:

PS: Welcome to you too, Diana!!! glad to have you here...