Hi Everyone,
How to make a long story short I have some sort of Neurological disease
I was dx with Lupus (SLE) in 1987 with steriod treatments through the years.
In 2000 I was taken in ER possible Stroke or MS
I've had a 2 band test on Spinal last one was negative... I have been
treated with MS meds since 2001 due to blood counts had to discontinue this past March.
In 2004 I was dx with Dysautonomia due to lesion on brain stem there is nothing to be done there the Neuro and Mayo said...
I just got back from 2wks at Mayo this week they say I dont have MS but Mixed Connective Tissue
Lupus, Sjogrens with complications of Dysautonomia.
I do have lesions on the brain and the Spine, the Lupus specialist says my Lupus isnt made enough to cause all the
CNS thats what the blood work says oh I also take Procrit injections when needed.
I have never been so mixed up could use advice support something I dont even know. I was due to start Tyasbri now I'm not.

Thank You for this Group,
Southern Blessings, Rita

Welcome Rita,
I hope you can find some help and ideas as you explore the forums.

Rita,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene

Rita,
This is my first time on the site. I have read a lot of good information. If you live in Indianapolis Indiana I lead a support group for the Sjogren's Foundation. Let me know if I can help.
Diana

Welcome Rita! Wow, you really have alot to deal with. I'm glad your'e here, as there's so much info and good people here to help.

Hang w/us and welcome again!

PS: Welcome to you too, Diana!!! glad to have you here...