WooHoo.....update on me
 

I saw my neuro this morning and explained about the pelvic pain and the external feeling in the nether region.

My neuro believes it's the MS, sensory in nature.....geez, at least I no longer feel like I'm crazy. He said since I have spinal lesions it's not uncommon to have pelvic pain due to those lesions. He said what they like to see with MS patients are other things ruled out, which I had, then the comfort level is there to say yes it's the MS.

We talked about different meds that might help and the decision was made for me to go back on Cymbalta.....it's the only one that won't add to my fatigue.

I told him my PCP wanted me on an AD for depression and I told him no, I'm not depressed. My neuro smiled and said he would mention in his report to my PCP that the Cymbalta is to help with nerve pain and not depression:D

I don't like being told I'm depressed when I'm not.....been there, know how it feels and ask for help when I need an AD.

Now I'm just waiting to hear from my sister. She sees the neuro for the first time today.

Cool, Snoop! I have been worrying about you so much. I guess it's good to get the bad news that MS is getting its way with you.:confused:

Man, I hope your sis just has some weird thing that can be stopped, I hate the thought that any of my sibs could have to deal with this crap.

I'll still be praying about this.:)

WooooooooooHooooooooooo!!! :Bow: :Excited: :Head-Spin: :Dancing-Chilli:

It's always a relief when you can say it's just the dang MS again. :rolleyes:

I hope the report is a good one on your Sis today...keeping fingers crossed. :)

Such good news, Lee Ann:hug:

LMAO....

Who woulda thunk hearing it's the MS would make me happy but it did :rolleyes:

I hate that my sister might have MS.....I know none of us wants those we love to end up with this disease, heck I wouldn't wish it on my worst enemy......well, maybe.....:p

Glad you got some answers from you Neuro Snoops. :hug: Been there done that with the same issues!

Of course, it took a round of steroids to get the pain and numbness to go away, cuz it was a stupid exacerbation! Along with the fatigue issues. Duh! And some urinary problems. This was at the very beginning of my MS journey. I have a spinal lesion too. Just one....but it occasionally kicks me in the bee-hind and man do I have a one heck of an exacerbation when it does. That's when I really YELL for the steroids. I cannot take it...but I have other symptoms too and I cannot afford to stay in bed for 3 or 4 weeks for them to subside.

So...it's the 'roids and they do the trick.

I hope your sister's appt goes well today. :hug:

Snoopy/LeeAnn

So thrilled it's just MS. Hard to say, but beats the alternatives ... I guess :confused:

Anxious to here how your sis's appointment. Finger crossed for a good report.

:hug:

Interesting, and great news, Snoopy. I would have never thought of pelvic pain as being related to MS, but I guess it makes sense since I've heard of others with "****" (edit: "bottom") spasms from the disease.

I was just reading up on pelvic pain (curiousity got the cat) and came across this:

"The bottom of the pelvis is comprised of a series of muscles. These muscles extend from the pubic bone in the front to the tail bone in the back. Whenever we are in pain, the natural tendency is to tense up our muscles. This applies to pelvic pain as well. Often, without even realizing it, a patient is clenching the pelvic floor muscles. Over time, months or years, these muscles can go into spasm and become scarred and unable to fully relax. This condition is similar to a knot in the muscle in your back. It is not a matter of just relaxing the muscle to make the knot go away, this is impossible. Just as deep tissue massage is needed to get rid of the knots (muscle spasm and muscle fibrosis) in the back, deep tissue massage can be needed in the pelvic area. A qualified physical therapist who deals with pelvic pain and is experienced in transvaginal (through the vagina) deep tissue massage of the pelvic muscle floor is usually needed to correct pelvic muscle floor spasms. Although muscle spasms may not seem like a serious condition to some, anyone who has experienced a severe spasm in the calf knows how excruciatingly the pain can be. Imagine having this pain level constantly in the pelvic area."

http://www.pelvicpain.com/learn.html

Since we have spasms everywhere else, it's probably not too much of a stretch to consider this alternative as the "MS-reason" for your pain. :confused:

Good luck for your sister. I hope the results prove less then MS.

Cherie

Thanks for the link Cheri, I found it very interesting. I'm glad you got curious ;)

Thanks Beth, I'm really okay with the fact it's the MS causing what I'm feeling. It's not fun but at least I know what I'm dealing with and I know I'm not crazy.

Cheryl, I'm glad the roids helped you. My neuro mentioned roids but he said since it's sensory he won't do them. I told him that's fine because I don't want them :p just make the pain go away and I'm good :) The vibrations are really annoying right now but I consider that a minor issue.

My sister had bloodwork done and is waiting for a c-spine MRI to be scheduled......other than that we no nothing.

Finally we can blame MS! Yeah it is MS's fault! Yeah!

Yeah!

*grabbing bat, chainsaw, sledgehammer, bobby pins*

This sounds like a job for Empathy Mannnnnn!!!!!!