cranial nerve involvement
 

I would love to hear from any of you that have cranial nerve involvement with your RSD and what you have done about the headache and vision difficulties. I have yet to find anything that addresses this problem well, and it is truly a pain in the....well in the head I guess. Although I have had RSD for 13 years this is a relatively new problem for me and is giving me fits. Any feedback would be appreciated.
Hoping this finds you having a good day
Kimberly

This probably won't help you but I remembered the name of the drug that took care of my headaches when I went through them. It was Bextra. Maybe bextera.

I think this was for blood pressure related headaches so it may not even be appropriate for you.

Good luck.

Hi Kimberly..

I dont know what help I can sugest as nothing seems to help the headaches long term too well for me either.. sometimes an antiinflamitory added to the mix can help some though.

I guess I have cranial nerve involvement if that is what they call it.. I was kinda out of it when my doc explained it... or rather hardly explained it at all :confused:
I had been getting lightning stabs in my head above my left ear, there and then gone within a minit, like someone was drilling in my head enouph to drop me to my knees with intense pain then a pain residue (echo) for a while after it. And a low grade headache to varying degrees most always it seems.

I went in to see my doc early this week I think (or late last week) an he did a whole bunch of very hard pressing on my head... gave me a whopper of a headache that I can still feel a residue of.. He said he was pretty sure that it was nerve related from the RSD. And he is usualy one for looking for other causes before/rather than saying it's RSD causing things. And of cource I hardly took in what he said after the skull squashing he gave me anyway, it was nasty.

I figgure this is just another area getting a cramp.. the cramps include the blood vescles or arterys in that area.. I figgure that is the same reason I get chest pain.. more muscles sciezing up.. just that in the head and heart you can feel as if you are dying and they replicate a stroke or heart attack in symptoms so well it's hard to know when it's time to seek help any more.:(

Hopefully someone will come along with advise on remedys or ideas to calm down the headaches for us that feel this aspect of RSD Kimberly I am afraid I probibly havent been much help except to say you are not alone my friend.

hugs,
Sandra

Cranial nerve involvement
 

Hi KImberely,
I am so sorry about the problems you are experiencing ((hugs)), I too get severe headaches and migraines, but I am not sure if it is Cranial Nerve Involvement. My PM doctor says that the headaches/migraines are a side effect of the tablets I am taking:mad:
Sometimes my headaches are so bad that they make me want to be sick :(
This is a good webite http://www.acupuncture-treatment.com..._migraine.html
I have heard that acupuncture can help with headaches and migraines
Take care and please let us know how you are
Love
Alison