I would love to hear from any of you that have cranial nerve involvement with your RSD and what you have done about the headache and vision difficulties. I have yet to find anything that addresses this problem well, and it is truly a pain in the....well in the head I guess. Although I have had RSD for 13 years this is a relatively new problem for me and is giving me fits. Any feedback would be appreciated.
Hoping this finds you having a good day
Kimberly

This probably won't help you but I remembered the name of the drug that took care of my headaches when I went through them. It was Bextra. Maybe bextera.

I think this was for blood pressure related headaches so it may not even be appropriate for you.

Good luck.

Hi Kimberly..

I dont know what help I can sugest as nothing seems to help the headaches long term too well for me either.. sometimes an antiinflamitory added to the mix can help some though.

I guess I have cranial nerve involvement if that is what they call it.. I was kinda out of it when my doc explained it... or rather hardly explained it at all
I had been getting lightning stabs in my head above my left ear, there and then gone within a minit, like someone was drilling in my head enouph to drop me to my knees with intense pain then a pain residue (echo) for a while after it. And a low grade headache to varying degrees most always it seems.

I went in to see my doc early this week I think (or late last week) an he did a whole bunch of very hard pressing on my head... gave me a whopper of a headache that I can still feel a residue of.. He said he was pretty sure that it was nerve related from the RSD. And he is usualy one for looking for other causes before/rather than saying it's RSD causing things. And of cource I hardly took in what he said after the skull squashing he gave me anyway, it was nasty.

I figgure this is just another area getting a cramp.. the cramps include the blood vescles or arterys in that area.. I figgure that is the same reason I get chest pain.. more muscles sciezing up.. just that in the head and heart you can feel as if you are dying and they replicate a stroke or heart attack in symptoms so well it's hard to know when it's time to seek help any more.

Hopefully someone will come along with advise on remedys or ideas to calm down the headaches for us that feel this aspect of RSD Kimberly I am afraid I probibly havent been much help except to say you are not alone my friend.

hugs,
Sandra

Hi KImberely,
I am so sorry about the problems you are experiencing ((hugs)), I too get severe headaches and migraines, but I am not sure if it is Cranial Nerve Involvement. My PM doctor says that the headaches/migraines are a side effect of the tablets I am taking
Sometimes my headaches are so bad that they make me want to be sick
This is a good webite http://www.acupuncture-treatment.com..._migraine.html
I have heard that acupuncture can help with headaches and migraines
Take care and please let us know how you are
Love
Alison