Are fatigue and spasticity forever?
 

Does the fatigue and spasticity stick around forever once you get them, or are they symptoms that remit occasionally??

My feet, especially the big toe, and legs are so sore tonight that walking is painful right now.

My big toe has hurt me for years...since I was young (early teenage years) I was told in 2001 when I ruptured my achilles tendon that the sore toe was arthritis. It's getting worse the older I get.

My toe actually feels like it's broken sometimes. I'm thinking of having my doctor check me for gout, and possibly I might ask for a rheumatoid test (had one in 2001 when I hurt my ankle...that doctor was wondering about sore spots I had in the joints of a couple of my fingers) The rheumatoid test was negative then. But, I have a relative with rheumatoid arthritis. I know some autoimmune diseases like to double up on a person sometimes.

When I worked and had to be on my feet all the time, my feet were so sore at the end of the day. I actually wonder if the ruptured achilles could have been from spasticity.

http://www.nationalmssociety.org/abo...oms/index.aspx

Erin, I don't know if you've read this information or not, but maybe it might be helpful.

As you know, everyone is different. So, there is no blanket yes or no answer to your question.

I can answer for myself in that I have good days and bad days. My worst days are when I get over heated (I have Uhthoff's syndrome) and when I have done too much, and when I am just plain tired. The spasticity rears it's ugly head.

As for the fatigue, I have it all the time. It's my #1 complaint, with pain being #2. I take 300-400 mg of Provigil a day to try and combat it.

You might want to take a look at the big picture and see just exactly what's causing your spasticity and fatigue. You are on Copaxone? I experienced severe fatigue from the C and had to quit. I couldn't take it. It's not a common side effect, but it's there.

That's the short answer! :D

It is for me, Erin, but, I've had this crappyass disease for
over 40 years and am now, at a platteau. LDN, I hope, is
keeping me from getting any worse but I yam what I yam
( in my Popeye voice).:p

When I was your age I was in remission, just as my DD is,
also. There is still so much hope for you Kids, to not get
to the SPMS point..:hug:

I agree with Cheryl.

Attacks, progression, certain meds (or lack of meds), triggers, lack of exercise/overall health, diet, stress level, heat . . . all sorts of things can impact fatigue and spasticity.

Sometimes symptoms which are eventually deemed "permanent" can improve too, whether that be by chance, by making changes in our lifestyle, or by using (or losing) certain drugs. I had bad spasticity for two years, and it was deemed permanent (without the use of neurontin, or whatever might help). LDN took away that symptom, and dropping antidepressants helped my fatigue level, tennitus, etc.

A lot is trial and error.

Cherie

Ok...so I'll just wait and hope that this stuff will go away in a few weeks or months.

I go to the neuro on wednesday. I wonder what my chances are of getting him to write me a script for LDN are. I'd really like to try that after all the reading I've done about it.

He's an older neuro (think one of his diplomas says "1948" on it) so I'm not sure if he thinks LDN does anything for MSers.

He was more than happy to write me a Rx for baclofen last fall. (I dont like baclofen, makes me feel weird and doesnt seem to help)

As long as you can convince him that it does no harm,
He may be up for it..:)

Good luck at your appt.:hug:

My spacticity hasn't changed since it started. But my the fatigue I'd suffered with for a couple of years disappeared for about a year (? I think it was about a year...but I could off on that).

Of course, it finally came back so I'm taking Provigil again. But it WAS gone for quite some time.

Take him some info on it....I bet Cherie and Sally can get you a bunch of info about it before you go on Wednesday.

[QUOTE=Erin524;267401]Does the fatigue and spasticity stick around forever once you get them, or are they symptoms that remit occasionally??

My wife was diagnosed with MS 7 years ago then told by her local doctor could be pernicious anaemia. started B12 therapeutic jabs, after 2-3 days fatigue disappeared. her B12 is less often now but fatigue has not returned. Although her spasms started getting bad again Jan 2007 her doc did nothing about it - told us to massage. It wasn't until she was hospitalised this year (April) we discovered she was anaemic again and spasms supposedly go hand in hand with iron deficiency - could of been an early warner to the anaemia. It's so important not to allow your doctor to give the MS brushoff - insist on more tests- don't take no for an answer.

Fatigue has been my one constant symptom from the beginning. It stinks but sometimes meds can help.
Weebs