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-   -   My HiCy update! (https://www.neurotalk.org/multiple-sclerosis/50202-hicy-update.html)

RedPenguins 07-17-2008 09:00 PM

My HiCy update!
 
Hi everyone,

Just wanted to update you...

I am day 11 post-chemo and today I was discharged from the outpatient part of the treatment... Tomorrow (Friday), they remove the catheter (hickman line) and I fly home on Saturday morning.

This process of HiCy has been really smooth for me. I think this is slightly atypical - though even those who have gotten sick and had some problems end up doing just fine as well. However, I still am in shock that I actually had chemo. It seems so unreal that I wasn't sick for a day - and yet, I had 4 days of inpatient high dose chemo. Weird. My hair is (finally) starting to fall out (when I run my hands through it, it comes out in small bits). I am sure any morning now, I will wake up and big clumps will be coming out.

Anyhow, just wanted to let everyone know how it went.

Now I wait and see how the MS (and I) respond.

:)

~Keri

SallyC 07-17-2008 09:22 PM

Wow, Keri, is your new immune system starting to build? Keep us informed and thanks.

Happy you are coming home..:hug:

starfish 07-17-2008 09:50 PM

It is so good to hear from you!! I am so glad you are doing so well. That was so fast. I thought you had to stay in reverse isolation for 2 weeks after chemo tx, but perhaps your numbers are good enough now.

It is amazing to me how quickly this all happened for you and how well you are doing.

I bet you can't wait to get home and sleep in your own bed!! Have a safe trip and thanks for keeping us updated.

This therapy is something I would consider in the future.

tovaxin_lab_rat 07-17-2008 10:18 PM

Thanks for the update Keri. I am so glad that something has finally gone right for you.

I find all this interesting and look forward to all your updates and information.

MSacorn 07-17-2008 10:19 PM

I can't believe it's over so soon. And I'm glad to hear you are doing so well and heading home soon. I'll continue the positive vibes and prayers too. I so want the nasty MS to be gone for you. Keep feeling better.

:hug:'s

Victor H 07-18-2008 12:16 AM

Thanks for the update!

It means alot to all of us.

-Vic

PolarExpress 07-18-2008 04:43 AM

You're an inspiration Keri! I hope everything continues to go smoothly..Thanks so much for the updates!

Jodylee 07-18-2008 06:25 AM

I'm so happy for you Keri :). I'm keeping my fingers crossed for you. I would seriously consider HiCy if I could afford to. Hopefully more doctors will start to do this treatment so it would be more accessible. Did ya get some cool wigs yet?? Personally, I would just go with the bald look. It's so hot out right now I'd shave my head if dh wouldn't have a fit :D.

weeble37 07-19-2008 08:52 PM

I'm glad to hear that you're doing so well and feeling so well. I really look forward to reading all of your posts about the HiCy process. I keep wanting to call it HiC, like the juice drink!

Your willingness to share your information and the process with us is so helpful and fascinating to me. I am always interested in hearing about how people do with any treatment, especially a new one like this.

I hope you get home safely and enjoy the time back in your own surroundings.

Hugs,
Weebs :hug:

Ivy2 07-19-2008 10:07 PM

Keri - I'm glad you came through the chemo so nicely - now you can concentrate on getting a better immune system going. Keep us posted. Good for you!


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