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-   -   I have MS! (https://www.neurotalk.org/multiple-sclerosis/50774-ms.html)

Dejibo 07-26-2008 05:27 PM

I have MS!
 
ok, after many pokes, prods, and tests by several special MDs. it has been determined that I DO NOT have primary sjogrens. The RA MD was more than premature in her zeal to provide me with a sjogrens dx. The MS MD said i have PRIMARY MS, RRMS. NOT sjogrens, and he proceeded to take a bite out of the other md for trying to drag me off my path. He said they work very hard to provide a dx, and frequently keep people ON limbo isle till they can prove or disprove MS, and he didnt hand me that dx lightly.

So, IF and thats a big IF I have secondary sjogrens, it doesnt matter if I have that lip biopsy or not, it wont change my treatment. it wont matter. I can still be treated for my poor old dry eyes without interfering with my dx.

My MRI shows 2 new non enhanced lesions and 2 new enhanced lesions. I was a run away train before and was collecting lesions like a kid collects baseball cards. So, this is a slow down for me. I am to stay on copaxone for another 6 months and we will re eval from there. it appears as though the C is starting to do its job. took forever with me.

Thanks for all the support.

hurtsobad73 07-26-2008 05:33 PM

So glad to hear you have a dx. Maybe not the best one, but no doubt you feel a little relieved knowing exactly what you are dealing with.

It gives those of us in "limbo land" so encouragement (if that is what you want to call it). I go see my neurologist (he is an MS specialist) in August and I am hoping to get this mess cleared up.

(((((((Hugs to you for all that you have gone through.))))))

Missy

Blessings2You 07-26-2008 05:35 PM

Support is yours.

Hey, were you near the tornado??

SandyC 07-26-2008 05:45 PM

I am not sure if I should say congrats or not. So, I'll just say I am glad you have some answers now and wont be driven off the path. :hug:

GladysD 07-26-2008 05:51 PM

Glad to hear that you've got some answers and your health is stabilizing!

Not glad to hear that it's MS, but what can ya do? ;)

:hug:

dmplaura 07-26-2008 06:07 PM

Finally some solid answers! And grats on the Copaxone working! :)

SallyC 07-26-2008 06:42 PM

Finally, a Doc with some gutts...Congrats on the Copaxone working.....that is good news.:)

:hug:

Bearygood 07-26-2008 06:44 PM

Glad you're getting definitive answers. That's reason enough to feel good! :)

AfterMyNap 07-26-2008 07:25 PM

Congratulations... right?

Has anyone taught her the secret handshake yet? ;)

Taffy 07-26-2008 07:42 PM

Congrats on the Dx! It is good to have someone tell you it is all in your head...so to speak..you know what I mean. MS..that is...a Dx...I mean...:D


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