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Old 07-26-2008, 05:27 PM #1
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Default I have MS!
ok, after many pokes, prods, and tests by several special MDs. it has been determined that I DO NOT have primary sjogrens. The RA MD was more than premature in her zeal to provide me with a sjogrens dx. The MS MD said i have PRIMARY MS, RRMS. NOT sjogrens, and he proceeded to take a bite out of the other md for trying to drag me off my path. He said they work very hard to provide a dx, and frequently keep people ON limbo isle till they can prove or disprove MS, and he didnt hand me that dx lightly.

So, IF and thats a big IF I have secondary sjogrens, it doesnt matter if I have that lip biopsy or not, it wont change my treatment. it wont matter. I can still be treated for my poor old dry eyes without interfering with my dx.

My MRI shows 2 new non enhanced lesions and 2 new enhanced lesions. I was a run away train before and was collecting lesions like a kid collects baseball cards. So, this is a slow down for me. I am to stay on copaxone for another 6 months and we will re eval from there. it appears as though the C is starting to do its job. took forever with me.

Thanks for all the support.
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Old 07-26-2008, 05:33 PM #2
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So glad to hear you have a dx. Maybe not the best one, but no doubt you feel a little relieved knowing exactly what you are dealing with.

It gives those of us in "limbo land" so encouragement (if that is what you want to call it). I go see my neurologist (he is an MS specialist) in August and I am hoping to get this mess cleared up.

(((((((Hugs to you for all that you have gone through.))))))

Missy
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Old 07-26-2008, 05:35 PM #3
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Support is yours.

Hey, were you near the tornado??
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Old 07-26-2008, 05:45 PM #4
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I am not sure if I should say congrats or not. So, I'll just say I am glad you have some answers now and wont be driven off the path.
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Old 07-26-2008, 05:51 PM #5
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Glad to hear that you've got some answers and your health is stabilizing!

Not glad to hear that it's MS, but what can ya do?

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Old 07-26-2008, 06:07 PM #6
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Finally some solid answers! And grats on the Copaxone working!
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Old 07-26-2008, 06:42 PM #7
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Finally, a Doc with some gutts...Congrats on the Copaxone working.....that is good news.

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Old 07-26-2008, 06:44 PM #8
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Glad you're getting definitive answers. That's reason enough to feel good!
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Old 07-26-2008, 07:25 PM #9
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Congratulations... right?

Has anyone taught her the secret handshake yet?
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Old 07-26-2008, 07:42 PM #10
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Congrats on the Dx! It is good to have someone tell you it is all in your head...so to speak..you know what I mean. MS..that is...a Dx...I mean...
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