"I may have to reverse your diagnosis."
 

I was diagnosed in June of 2007 and haven't had an MRI since then.

I started out on Copaxone until I was able to get LDN. I've been on LDN since early December. My Neuro KNOWS I wanted LDN but we don't actually discuss if I'm using it because he won't keep me as a patient if I go against his suggestion.

I have already explained in the LDN thread, the wonderful effects that I have had from LDN. However I don't think it occured to me it might slow progression. I think I just felt that was too much to ask for.

With everything going on I just haven't been reachable lately. My poor Neurologist finally emailed me instead. :p

"If you came into my office today I could not diagnose you with MS. You no longer meet the criteria for an MS diagnosis. Your lesions are smaller and you have less than is required for an MS diagnosis. I may have to reverse your clinical diagnosis. Whatever you are doing, keep doing it. If you continue to progress like this for another year, I may consider finding out exactly what you are doing to use it with my other patients."

How do you respond to that? I was speechless.

Wow. That's all I can say. How in the world did THAT happen? :eek:

Oh WOW. Are you serious? That's amazing news!

Sheesh, makes me want to hook up with LDN. :p

Oh Chelsae...how wonderful for you! If only more could be told that same thing.

I daresay we can all rely on you now for a reference for LDN. :D

Thank you for sharing that with us, and I hope your lesions continue to shrink.

WOW! Nice

I don't think I'll ever be told that, it's too late for me, my lesions are not going anywhere. 6 years, 6 brain MRIs and the first looks like more or less like the last, no more, no less. The no MORE is Good enough for me. If I lost a finger in an accident, I wouldn't expect it to grow back, but I'm glad I'm not losing more 'fingers'.

GREAT NEWS!!!!! What's it going to take to get more neuros to believe in LDN? I hope and pray your lesions continue to shrink and you WILL get the non-MS diagnosis!! I'm fully convinced if my neurologist would have let me take it sooner, I'd still be walking.

By the way, Hi Larry! Good to see you again! :)

That's wonderful news, Chelsae! Thanks for sharing.

I started LDN last month. Been experiencing vertigo for the past few days, but the LDN pharmacist says its not likely due to the LDN.

Meanwhile, just trying to hang in there.

Seems like our docs should try the least expensive, most potentially effective drugs first. Don't know why we as patients are having to educate our doctors. :confused:

Something that maybe your Neuro isn't aware of is the lesions do sometimes reduce in size or go away in MS. You probably still have it, if you did have it at the beginning. The LDN will make you feel better, I have found that the Endorphins from chocolate work pretty good too.:)

Very true, Bill . . . especially if the lesions we are talking about are the "enhancing" kind.

We can also go into remission at any time, which is why it is very hard to evaluate the efficacy of ANY drug, especially over the short run. :(

Cool!! Is that Cadbury, or some other brand? I wanna know which type you've found that:

- reduces your spasticity
- rectifies your claw hand
- allows you bladder and bowel control
- makes you well enough to go off several other drugs
- corrects your balance and vertigo
- improves your pain
- reduces your EDSS by one point
- etc.

Oh, and what dosage should I use too . . . cause I might be able to save myself up to $20 a month just by eating chocolate. :Dancing-Chilli:

Cherie

What a wonderful emal for you to receive! That's awesome.