New Bee here RSD I Fear
 

Sorry I am new so I have to learn the ropes. I have a few questions, but I don't know how to get started.

Welcome!
 

You can just ask away from here or you can start a new thread if you like. Also, you can send anyone a private message. Just reply with your questions if you like. In any event, welcome to the forum! Sorry that you find a need to be here but, you will find great support and information from those who know first hand.
My name is Diana and I have full body RSD, since July 1989. All the best

Hello and Welcome to Neurotalk ... you will meet many great people here who I am sure will be more than happy to help you if they can!!!

As Diana said, you can just ask your questions in this thread or you can start another thread should you wish.

I'm sorry to hear that you might have RSD :hug: - I really hope you get the help and treatment you need real soon and I am keeping you in my thoughts!! I also suffer from RSD - I have it in my left leg and right arm and developed it when I was 12 years old and I am now 13. If you ever want someone to talk to, please know that I am here because I DO understand some of what you are going through!!!

Take care and I look forward to seeing you around the forum more soon!!
Alison

Hi Diana,
 

[I]Dear girl, you say you have full body RSD, I can't fathom that. Have you tried a hyperbaric chamber or a Ketamine Infusion? You've probably tried everthing, Are you on a lot of meds.? Did you start sympathetic nerve blocks early? You are very brave , I can tell or you wouldn't be here helping others...[ /I]

Hi my name is Jo i have crps/rsd in my left foot and ankle. One of the things with crps/rsd is to get early treatment. Im an example of that. I do not say this in pride, cause i was just blessed to have a doc who recognized it. One of the things i know is to keep searching for an answer and for a doctor who is up to date and knowledgeable and who listens too you. I also have a couple other pain issues, but for now my crps/rsd is much milder than most. Ask us anything and Ali is a wonderful wonderful young woman who can give you alot of advice.

Blessings.

Jolene