Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 01-15-2009, 02:03 PM #1
Kytyki Kytyki is offline
New Member
 
Join Date: Jan 2009
Posts: 2
15 yr Member
Kytyki Kytyki is offline
New Member
 
Join Date: Jan 2009
Posts: 2
15 yr Member
Default New Bee here RSD I Fear

Sorry I am new so I have to learn the ropes. I have a few questions, but I don't know how to get started.
Kytyki is offline   Reply With QuoteReply With Quote
Old 01-15-2009, 02:41 PM #2
DianaA's Avatar
DianaA DianaA is offline
Member
 
Join Date: Jun 2007
Posts: 329
15 yr Member
DianaA DianaA is offline
Member
DianaA's Avatar
 
Join Date: Jun 2007
Posts: 329
15 yr Member
Smirk Welcome!

Quote:
Originally Posted by Kytyki View Post
Sorry I am new so I have to learn the ropes. I have a few questions, but I don't know how to get started.
You can just ask away from here or you can start a new thread if you like. Also, you can send anyone a private message. Just reply with your questions if you like. In any event, welcome to the forum! Sorry that you find a need to be here but, you will find great support and information from those who know first hand.
My name is Diana and I have full body RSD, since July 1989. All the best
DianaA is offline   Reply With QuoteReply With Quote
Old 01-16-2009, 03:32 PM #3
marybeth37 marybeth37 is offline
New Member
 
Join Date: Nov 2008
Location: Michigan
Posts: 4
15 yr Member
marybeth37 marybeth37 is offline
New Member
 
Join Date: Nov 2008
Location: Michigan
Posts: 4
15 yr Member
Thumbs up Hi Diana,

Quote:
Originally Posted by DianaA View Post
You can just ask away from here or you can start a new thread if you like. Also, you can send anyone a private message. Just reply with your questions if you like. In any event, welcome to the forum! Sorry that you find a need to be here but, you will find great support and information from those who know first hand.
My name is Diana and I have full body RSD, since July 1989. All the best
[I]Dear girl, you say you have full body RSD, I can't fathom that. Have you tried a hyperbaric chamber or a Ketamine Infusion? You've probably tried everthing, Are you on a lot of meds.? Did you start sympathetic nerve blocks early? You are very brave , I can tell or you wouldn't be here helping others...[ /I]
marybeth37 is offline   Reply With QuoteReply With Quote
Old 01-17-2009, 10:00 PM #4
Jodee's Avatar
Jodee Jodee is offline
Junior Member
 
Join Date: Feb 2008
Location: Buffalo NY
Posts: 34
15 yr Member
Jodee Jodee is offline
Junior Member
Jodee's Avatar
 
Join Date: Feb 2008
Location: Buffalo NY
Posts: 34
15 yr Member
Default

Hi my name is Jo i have crps/rsd in my left foot and ankle. One of the things with crps/rsd is to get early treatment. Im an example of that. I do not say this in pride, cause i was just blessed to have a doc who recognized it. One of the things i know is to keep searching for an answer and for a doctor who is up to date and knowledgeable and who listens too you. I also have a couple other pain issues, but for now my crps/rsd is much milder than most. Ask us anything and Ali is a wonderful wonderful young woman who can give you alot of advice.

Blessings.

Jolene
Jodee is offline   Reply With QuoteReply With Quote
Old 01-15-2009, 03:05 PM #5
ali12's Avatar
ali12 ali12 is offline
Magnate
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
ali12 ali12 is offline
Magnate
ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Heart

Hello and Welcome to Neurotalk ... you will meet many great people here who I am sure will be more than happy to help you if they can!!!

As Diana said, you can just ask your questions in this thread or you can start another thread should you wish.

I'm sorry to hear that you might have RSD - I really hope you get the help and treatment you need real soon and I am keeping you in my thoughts!! I also suffer from RSD - I have it in my left leg and right arm and developed it when I was 12 years old and I am now 13. If you ever want someone to talk to, please know that I am here because I DO understand some of what you are going through!!!

Take care and I look forward to seeing you around the forum more soon!!
Alison
__________________
To the World you may be one person, but to one person, you may be the World.
ali12 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
its all about fear DMACK Survivors of Suicide 4 03-20-2008 04:12 PM
Gyn Fear, Anyone Else?! Ellie Women's Health 2 03-30-2007 01:01 PM
The Only Thing We Have to Fear Is Fear Itself clouds z Social Chat 0 09-05-2006 09:36 PM


All times are GMT -5. The time now is 06:46 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.