NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   Awesome! Awesome! (https://www.neurotalk.org/myasthenia-gravis/89309-awesome-awesome.html)

erinhermes 06-08-2009 06:00 PM

Awesome! Awesome!
 
Sooooooooo, Friday was my last "official" monthly IV IG....had my PICC line pulled and EVERYTHING! Woo-hoo! No more weekly visits to the Methodist - no more monthly IV IG - no more PICC line to worry about! I feel FREE!


I am still @ 20 mgs of pred, but hopefully even that will be reduced to every other day - I'd love to lose some of my post med induced weight gain...

Walked a mile on my treadmill and cannot wait to go into work 2morrow!

Loving my IMURAN - I think it is finally doing it's thing!

What a great day!

I hope all of you are feeling strong and HAPPY today!

Big, big hugs!
Erin:D

rezmommy 06-08-2009 06:53 PM

So happy for you Erin. Going to work tomorrow .... you must be feeling good. Hope that you have a fantastic day. Mel

maryec 06-08-2009 07:01 PM

Great news Erin , I am so happy for you ! Enjoy !

Pat 110 06-09-2009 07:14 AM

Hi Erin,

Good for you! Have a great day at work, but don't overdo! ;)Keep us posted.

Hugs,
Pat

xmas 25 06-09-2009 07:27 AM

good morning erin!!!!! what a great feeling this must be!!! enjoy enjoy and enjoy some more!!!! i thank you for sharing your journey -it gives the rest of us education,compassion and hope!!:trampoline:

Maxwell'sMom 06-09-2009 09:41 AM

Soooo Happy for you Erin!!!!!!!!!! I know of one person who went into complete drug remission from Imuran...sooo you go girl!!!:You-Rock:
Now, get out there and enoy life!!
Love
Lizzie:hug:
:Head-Spin:

Joanmarie63 06-09-2009 12:44 PM

Way to go!!!! Isn't it a wonderful feeling knowing you can do things again! :hug:

Tbarney 06-09-2009 04:04 PM

Great news Erin! How do you know this will be your last treatment? If you get IVIG monthly, don't you need to see how you feel in a month? I am so confused by all of this. :eek: How long did you have the PICC line in?



Quote:

Originally Posted by erinhermes (Post 520906)
Sooooooooo, Friday was my last "official" monthly IV IG....had my PICC line pulled and EVERYTHING! Woo-hoo! No more weekly visits to the Methodist - no more monthly IV IG - no more PICC line to worry about! I feel FREE!


I am still @ 20 mgs of pred, but hopefully even that will be reduced to every other day - I'd love to lose some of my post med induced weight gain...

Walked a mile on my treadmill and cannot wait to go into work 2morrow!

Loving my IMURAN - I think it is finally doing it's thing!

What a great day!

I hope all of you are feeling strong and HAPPY today!

Big, big hugs!
Erin:D


TxSimon 06-09-2009 07:05 PM

Erin,
So glad things are good for you. I just finished my two days of IVIG and I now have my strength back. The "juice" does wonders. If I could just get rid of these nagging side effects, I would be ok. I hope they go away in a couple of days. Again, so happy for you and remember to not overdo!!
Simon

erinhermes 06-09-2009 07:46 PM

Hi Tbarney!
 
Hello there!:D

It was my "scheduled" monthly IV IG - if I need a quick "pick me up", I'll go back in and have another PICC line put in.....God willing, I won't!:D

My neuro thinks I'm stabile enough now to go without monthly treatments, but you never know! I do love the fact that I am now down to 20 mgs of pred......maybe I'll finally look like a woman again! LOL:D

I had my line in for 5 months - an eternity in my book - and would reduce my pred after my monthly visit. I have a very aggressive neuro who does not want to see me crash AGAIN! Did I mention how much I love this man?:DI will not miss my weekly visits to have my line flushed @ all, though I will miss the nurses.

The whole goal is to get me down to 20 mgs of pred every other day - 15 just made me crash......:(

We'll see how it goes......if you pray, please do so for me! I would love to not have to go the hospital again - EVER!:D

Big, big hugs!
Erin:D



Quote:

Originally Posted by Tbarney (Post 521302)
Great news Erin! How do you know this will be your last treatment? If you get IVIG monthly, don't you need to see how you feel in a month? I am so confused by all of this. :eek: How long did you have the PICC line in?



All times are GMT -5. The time now is 10:26 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.