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Old 06-08-2009, 06:00 PM #1
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Heart Awesome! Awesome!
Sooooooooo, Friday was my last "official" monthly IV IG....had my PICC line pulled and EVERYTHING! Woo-hoo! No more weekly visits to the Methodist - no more monthly IV IG - no more PICC line to worry about! I feel FREE!


I am still @ 20 mgs of pred, but hopefully even that will be reduced to every other day - I'd love to lose some of my post med induced weight gain...

Walked a mile on my treadmill and cannot wait to go into work 2morrow!

Loving my IMURAN - I think it is finally doing it's thing!

What a great day!

I hope all of you are feeling strong and HAPPY today!

Big, big hugs!
Erin
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Old 06-08-2009, 06:53 PM #2
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So happy for you Erin. Going to work tomorrow .... you must be feeling good. Hope that you have a fantastic day. Mel
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Old 06-08-2009, 07:01 PM #3
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Great news Erin , I am so happy for you ! Enjoy !
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Old 06-09-2009, 07:14 AM #4
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Hi Erin,

Good for you! Have a great day at work, but don't overdo! Keep us posted.

Hugs,
Pat
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Old 06-09-2009, 07:27 AM #5
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good morning erin!!!!! what a great feeling this must be!!! enjoy enjoy and enjoy some more!!!! i thank you for sharing your journey -it gives the rest of us education,compassion and hope!!
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Old 06-09-2009, 09:41 AM #6
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Soooo Happy for you Erin!!!!!!!!!! I know of one person who went into complete drug remission from Imuran...sooo you go girl!!!
Now, get out there and enoy life!!
Love
Lizzie
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Old 06-09-2009, 12:44 PM #7
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Way to go!!!! Isn't it a wonderful feeling knowing you can do things again!
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Old 06-09-2009, 04:04 PM #8
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Great news Erin! How do you know this will be your last treatment? If you get IVIG monthly, don't you need to see how you feel in a month? I am so confused by all of this. How long did you have the PICC line in?



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Originally Posted by erinhermes View Post
Sooooooooo, Friday was my last "official" monthly IV IG....had my PICC line pulled and EVERYTHING! Woo-hoo! No more weekly visits to the Methodist - no more monthly IV IG - no more PICC line to worry about! I feel FREE!


I am still @ 20 mgs of pred, but hopefully even that will be reduced to every other day - I'd love to lose some of my post med induced weight gain...

Walked a mile on my treadmill and cannot wait to go into work 2morrow!

Loving my IMURAN - I think it is finally doing it's thing!

What a great day!

I hope all of you are feeling strong and HAPPY today!

Big, big hugs!
Erin
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Old 06-09-2009, 07:05 PM #9
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Erin,
So glad things are good for you. I just finished my two days of IVIG and I now have my strength back. The "juice" does wonders. If I could just get rid of these nagging side effects, I would be ok. I hope they go away in a couple of days. Again, so happy for you and remember to not overdo!!
Simon
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Old 06-09-2009, 07:46 PM #10
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Smile Hi Tbarney!
Hello there!

It was my "scheduled" monthly IV IG - if I need a quick "pick me up", I'll go back in and have another PICC line put in.....God willing, I won't!

My neuro thinks I'm stabile enough now to go without monthly treatments, but you never know! I do love the fact that I am now down to 20 mgs of pred......maybe I'll finally look like a woman again! LOL

I had my line in for 5 months - an eternity in my book - and would reduce my pred after my monthly visit. I have a very aggressive neuro who does not want to see me crash AGAIN! Did I mention how much I love this man?I will not miss my weekly visits to have my line flushed @ all, though I will miss the nurses.

The whole goal is to get me down to 20 mgs of pred every other day - 15 just made me crash......

We'll see how it goes......if you pray, please do so for me! I would love to not have to go the hospital again - EVER!

Big, big hugs!
Erin



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Great news Erin! How do you know this will be your last treatment? If you get IVIG monthly, don't you need to see how you feel in a month? I am so confused by all of this. How long did you have the PICC line in?
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