Hi everyone, this am like many, I awoke with severe bone pain in my left shin, tibia. to the point that any weight on the bone could make me feel like i might black out. I am curious if anyone else experiences episodes of extreme bone pain, not continuous aching, not muscular, but deep dull bone pain, mine become sharp only if I go to bare weitht on it.

This same type of pain is why when during the first year when i was undiagnosised -i thought it must be bone cancer. this today was in my left leg, orginally it started in my original injury leg the right.

Im not sure i have this severe of bone pain any where else except perhaps my spine and that is hard to distinguish as I also have such severe buring in my back as well.

If you do have the bone pain, pleaes describe best you can,, what you do for it, other than wait it out, and how severe it becomes please.

The frequency of my bone pain attacks is increasing each year.
Does anyone know any medical reason for the escalation?

thanks so much cz

I have severe deep bone aching pain... feels like my bones are being twisted, the pressure is so intense it feels as though my bones are being stabbed by some large hot fire poker.

I often describe it as my bones feel like they are going to explode at any minute.

This is a terrible to pain to have... I don't know what causes this..I'm sure my doctors have told me but I can not remember.

I told my doctor that it's true that RSD hurts completely to the bone... 100% from skin through muscle, tendons, ligaments, blood vessels, and bone.

How much more pain can we take??? What is going to hurt next??
(This is a constant thought for me...)

I hope and pray your pain eases soon.

Abbie

What you're describing is exactly it. Definitely!
Then again, nerves go all over your body and are attached to practically everything, blood vessels, muscles, bone, ...

That's me.

The intensity of my pain varies. But I basically always hurt. If I use my arms for anything too strenuous (heavy lifting, pulling, digging in my garden, raking, etc) my head hurts. When I start to build a tolerance for my meds my pain increases dramatically until the strength of my meds is increased accordingly. Or when my PT massages my head (he only did that once, thank God!) or tries to desensitize it it hurts a lot more also. I am also very weather sensitive. Other parts of my body are extremely painful, but I feel its the pain in my head that really disables me.

Sandy

Hi CZ
Im sorry to hear this,,I had a a THR 4/13 of this year,ive had severe bone pain in the hip joint ever since,,it has to be coming from behind the acetabular[cup] because the hip is ceramic,,i dont know or my dr,if its rsd or the cup is loose[has failed] the exray shows it in place but that doesnt mean its not loose[its a pressed fit and not glued],,,but ever since the day of the operation,im still on crutches because of debilatating pain [in the bone],,,we keep postponing the revision ,waiting for God to heal me,,,and another opeartion could be catrostorphic even with a continous block,,so im stuck in between a catch 22....what sandy just said makes since,, my body will grow a tolerance level of the pain meds and acually increase my pain,,if i lay off the meds for 4 or more days ,the pain levels come back down,,,,,,,,,,and abasaki,,im so sorry for the pain for which you are induring,,[we have spoke before],,,i wish you and all a miracle of healing from jesus our lord,,,,,,,,,,,,,,,,,much love and concern,,,,,,,,,,,,,,,bobber

Lava running through my bones

Abbie, thank you. When you wrote-"What is going to hurt next How much more pain can we take??" I have said this , feft this and cried this question so many times. This is the despair bone pain evokes.Thank you so much for sharing this, cz

Bobber, yes we have spoken before - I am so so sorry for your continued pain you are truly suffering having this bone pain 27/7 in your hip, I feel so badly for you. Mine, thank God, has never lasted over 3-4 hours in one limb.

The combination of this posts really allows for the articulation of this pain for me, lava in my bones(from Sandel). is so expressive for my type of bone pain." the way that you feel you master controlling one area either with meds or mentally and just as you do it moves to a new area to torment.", this is so true.

And the ever present question of how much more pain can we take?? As Abbie wrote above, I have asked this of myself over and over again when i have this bone pain which I consider to be the most devastating pain form of rsd ,so far.
I hate to say as - as soon as I think I have faced the worst a new terror arrives.

God bless to all and thank you so much. CZ

that how my shoulders and arms hurt so bad the bones

rsd31 so so sorry for your pain, does anything help you with the pain?God bless, cz