Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-30-2009, 08:39 AM #1
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Default Many THANKS to all of you.

I wanted to thank all of you again for your support. I'm glad we all have each other on here.

I am doing better today. I talked to my step-daughter last week and she was much worse so it brought me down again but as I said, she is strong.

I turned 58 today and her birthday is Sept. 2nd so it's going to be very hard for her I know. I am having trouble figuring out how to acknowledge her birthday after her loss just happened.

I wanted to mention the weather here too. It's been crazy. August has been very rainy which is not typical Colorado weather. I have had to use my heat 3 times this month, definately not Colorado weather. Today it looks like fall of the year and several have told me that the leaves are already turning in the mountains. I want to take a drive and go see the Aspen leaves turning soon.

The weather reaks havok on your pain. My legs and feet at night hurt and seem to never warm up. They stay ice cold. The kids are getting me a new electric blanket today though. I do believe we are going to have a very long cold winter. Last winter was very mild.

I was just wondering if your weather has been as wierd as ours. We have only had 2 days of over 100 degree weather this summer. That's ok with me too but it sure isn't our norm.

Thanks again for all of your support. I am trying my best to pull myself up from everything and I'm sorry I don't come on more to answer any of you. I just have trouble satting at this computer for very long anymore. Not so much the pain but the anxiety.

Ada
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Old 08-30-2009, 09:26 AM #2
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I totally agree about this summer weather. Some locales are calling it the non-summer or the summer that wasn't.

We only had about 5 days this whole summer where the sun shined and it got up to 70F. (at our summer place in the UP of Mich.) It was frightful...since our cabin is on an island, with NO heat, no running water, no electricity save a little generator.
We had alot of high winds and dangerous waters too.

I wore shorts about 4 times! My flowers rotted. And the indigenous plants were stunted and very late. So we came back early. Normally I stay past Labor Day, but I just couldn't do that this season. We saw an article in USA Today newspaper showing on a map and explaining how the jet stream was moved for some reason, dumping cold wet weather on alot of USA.

I am still catching up, so I haven't read about your step daughter, yet. -- going to now.

edit to add... oh, my, what a summer you had! I am so sorry for your losses. And suicide is even harder to deal with.
This summer about 50 miles from us, there was a huge family reunion.
10 members and a couple of dogs were walking along a road near the area at night and an SUV driven by a guy who had a limited license for previous infractions--lost control or he was intoxicated or whatever, hit them all. At the time we left for home 3 had died, the dogs died, and the others were seriously injured! He fled the scene, and was found the next day. Now he is awaiting arraignment, in a facility far way for HIS safety! It was a totally freak thing. Many were from out of state, and the ones killed were all young women.

Ada, you know we have a Survivors of Suicide forum here that is very welcoming and full of members who can help your step-daughter further if she needs it. Take a look, and see what you think for your situation. That has to be very traumatic for her.
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Last edited by mrsD; 08-30-2009 at 10:04 AM.
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Old 08-30-2009, 01:32 PM #3
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happy birthday ada. love ya tons iam happy that you are feeling better hang in there hun.. weather here is crazy goes from 90-70s and tons of rain.. makes me feel horrible plus there is a ton of illness here i have had a stomach virus for a week my oldest has sinus infection and problems with her asthma. its just nuts

carrie
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




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Old 08-30-2009, 07:48 PM #4
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hi ada, glad ya liked my email. but i was a little off key on the singing huh? laffs...

hope you got all the work accomplished with your friend...

our weather here has been horrible too.....guess the moderator is from mi too.......upper tho..i am northern mi (lower) ...now that i got you totally confused.....laffs... we have only had about three or four nice summer days too.......today is in the 50s and it is going into the low 30s tonight...frost freeze warning...so i put the flowers that i could, into the garage................................
we are seeing color changes here too....grrrrr i am heading to florida for a week wed..can't wait...............all by myself.....frank is staying home...hahahaha he is having a revision on the scs the end of sept....wish him luck.....

this past week has really put him into a major flare............................off the charts pain.......the weather is a major factor............................................ ..

well, have a great night ada, and again.....HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY HAPPY BIRTHDAY HAPPY BIRTHDAY TO YOU......(THIS TIME IT IS ON KEY)
HUGS
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Old 08-30-2009, 08:23 PM #5
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Heart Happy Birthday!!!

Happy Birthday Ada! I wish I was there to celebrate with you. Missed you on Saturday, but I'll call tomorrow!
I love you. Di
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Old 08-30-2009, 09:59 PM #6
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Happy Birthday, Ada. I think of you and send you blessings to ease your pain.
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 08-31-2009, 12:37 AM #7
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Happy birday Ada
I live in new mexico,,the humity is low and the heat
on the bones in the dead of winter feels good,,ive been thru vail colorodo,,,its cold,im just in too bad of shape to take the bitter cold anymore ..although i love snow and the brisk clean feeling and smell that comes with winter and the smell of pine tree's...I wish you and yor familly well and the best,,,may the lord in whom i love and serve be with you and guide you always,,,,,,,,,,,,,,much love,,,,,,,,,,bobber
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Old 08-31-2009, 03:55 PM #8
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Thumbs up

Happy Birthday Ada!!

It has been so hot around here, and that is normal LOL! But I hear that we are going to get some of that early fall type weather in a week or so, and that wont be so normal.

It has been above average hot though.
This was on my patio a couple of weeks ago, and it has been cookin here. We have fires all over the state!


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Old 08-31-2009, 08:34 PM #9
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Quote:
Originally Posted by dreambeliever128 View Post
I wanted to thank all of you again for your support. I'm glad we all have each other on here.

Happy Birthday Ada.

I sincerely hope that your family has begun the healing process.

It is wonderful that we have each other - it's a great reminder that in giving to others, you receive in return. And in order to have friends, you need to be a friend first.

You're the best. Peace and love, Sandy
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Old 09-01-2009, 07:54 AM #10
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Sorry I missed this post yesterday. Happy Belated Birthday.

Our weather has been crazy this summer. We were hot and humid in June not normal for Ohio. We had two days that it was 90 this summer. The last couple of days have been like falls days the low this morning was 39. We have had more rain than normal this summer. That's good for our lawn business.

Take one day at a time and I hope each one is better than the last.

Take care,
Sherrie
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