Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 08-31-2009, 08:30 PM #1
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
Crazy Sounds crazy but RSD'ers.. any jaw/teethpain??

Really interested any out there can help me understand having jaw or teeth pain..I understand how it can happen as we have sympthetic nerves through our closed circuit system.. My dentist has actually picked up on a "halo" or "shadow" ring around the root of my tooth, unexplainable and it hurts all of the time.. root canal done in the nerve of the tooth.. so pain has to be in my jaw at the base of the tooth.....Any thoughts???
keep smilin is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-21-2015), Enna70 (10-20-2015)

advertisement
Old 08-31-2009, 08:34 PM #2
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

Yes, I have very sensitive teeth, it actually feels like the "tips" of my front teeth especially have a weird sensation sometimes.
I had or have TMJ also, and was operated on bilaterally for that twice.
Years of treatment for that.
The pain was in my face and became associate with headaches.

I use a desensitizing toothpaste always now.

pete
AintSoBad is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-21-2015), Enna70 (10-20-2015)
Old 09-01-2009, 03:35 AM #3
Cake Cake is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 148
15 yr Member
Cake Cake is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 148
15 yr Member
Default

I get the same pains. I always have a lot of jaw pain, almost like I have too many teeth in my mouth and there's pressure there. The pain goes from up by my ears to the top and bottom of my jaw, right round both sides of my face.

I recently had to have some teeth out so they did extra local at the start and the end of the procedure to help with the pain and it all worked well. I was worried about problems from all the sympathetic nerves in my face but it was all fine.
__________________
RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS.
Cake is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-21-2015), Enna70 (10-20-2015)
Old 09-01-2009, 08:04 AM #4
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
Default Tooth pain common with RSD

Hi everyone I had to comment on this one, thank you for posting it. I have very serious, scary pain on the left side of my face, jaw and 4 molers on the left side. I went to the dentist. there is nothing wrong with the teeth.

Infact two are caps with the nerves gone. It is rsd and worse something called the trimengal nerve(spelling?).

I once put oral gel on one of the molars or tried to and almost blacked out fromt he pain the coldness of the gel caused. thank God this pain is intermitten for me here one day for a few hours then gone for a while etc.

I read up on the site for full time activity from this nerve and the people that have that may suffer more than RSD if thats possible. They have multiple surgeries to have facial nerves removed etc. So I pray it does not get to that point for any of us.

Dr. S had two specail neck nerve blocks done for me. I can not explain to you how painful they were, no anesthetic at Hanahneman, but there were effectrive.

It was kind of like the coma, at that point Id have done anything to stop the face and tooth pain. thank you again for posting thiis, sincerely cz
CZZ74 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-21-2015), SBOWLING (09-10-2009)
Old 09-08-2009, 06:51 PM #5
ALASKA MIKE ALASKA MIKE is offline
Member
 
Join Date: Apr 2009
Location: Alaska
Posts: 158
15 yr Member
ALASKA MIKE ALASKA MIKE is offline
Member
 
Join Date: Apr 2009
Location: Alaska
Posts: 158
15 yr Member
Default

sometimes a NTI helps with the jaw/face/cheek pain.
ALASKA MIKE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-21-2015), Enna70 (10-20-2015)
Old 09-08-2009, 08:04 PM #6
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
keep smilin keep smilin is offline
Member
 
Join Date: Aug 2009
Posts: 851
10 yr Member
Cool Nerve is gone but still constant pain...

Quote:
Originally Posted by CZZ74 View Post
Hi everyone I had to comment on this one, thank you for posting it. I have very serious, scary pain on the left side of my face, jaw and 4 molers on the left side. I went to the dentist. there is nothing wrong with the teeth.

Infact two are caps with the nerves gone. It is rsd and worse something called the trimengal nerve(spelling?).

I once put oral gel on one of the molars or tried to and almost blacked out fromt he pain the coldness of the gel caused. thank God this pain is intermitten for me here one day for a few hours then gone for a while etc.

I read up on the site for full time activity from this nerve and the people that have that may suffer more than RSD if thats possible. They have multiple surgeries to have facial nerves removed etc. So I pray it does not get to that point for any of us.

Dr. S had two specail neck nerve blocks done for me. I can not explain to you how painful they were, no anesthetic at Hanahneman, but there were effectrive.

It was kind of like the coma, at that point Id have done anything to stop the face and tooth pain. thank you again for posting thiis, sincerely cz
Hi CZ and all... I will start tooth sensitive toothpaste.. funny, but even with a root canal the pain remains.. but makes sense as th sympathetic nerves run thru our entire bodies... seems we all know that feeling... the pain remains.. thanks for all of your input...I wish you all an easier time of it..
keep smilin is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-21-2015), Enna70 (10-20-2015)
Old 09-09-2009, 11:00 AM #7
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

I had a root canal 2 years ago. Even though it's been executed perfectly, I can still feel it pull and twinge at the base of the tooth.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-21-2015)
Old 01-10-2014, 05:12 PM #8
Dhall748 Dhall748 is offline
Junior Member
 
Join Date: Jan 2014
Location: Dawsonville, GA
Posts: 21
10 yr Member
Dhall748 Dhall748 is offline
Junior Member
 
Join Date: Jan 2014
Location: Dawsonville, GA
Posts: 21
10 yr Member
Default

Quote:
Originally Posted by keep smilin View Post
Really interested any out there can help me understand having jaw or teeth pain..I understand how it can happen as we have sympthetic nerves through our closed circuit system.. My dentist has actually picked up on a "halo" or "shadow" ring around the root of my tooth, unexplainable and it hurts all of the time.. root canal done in the nerve of the tooth.. so pain has to be in my jaw at the base of the tooth.....Any thoughts???
I have jaw pain, and the dentist also saw some kind of 'shadow'.
I knew nothing about crps in the jaw. I was diagnosed 7 years ago. Left arm, shoulder....now spreading to scapula, left jaw, right jaw and sometimes right arm/scapula. Jaw pain started 3 months ago after minor dental work.
I saw a dentist and root canal specialist...both noticed shadow, but not enough evidence to do the root canal. This is weird to see this happened on someone else with diagnostic images.
Dhall748 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-21-2015), Enna70 (10-20-2015)
Old 01-11-2014, 12:24 AM #9
HeidiB's Avatar
HeidiB HeidiB is offline
Junior Member
 
Join Date: Apr 2013
Location: Holiday, Florida
Posts: 67
10 yr Member
HeidiB HeidiB is offline
Junior Member
HeidiB's Avatar
 
Join Date: Apr 2013
Location: Holiday, Florida
Posts: 67
10 yr Member
Default

Hey I wanted to tell u from a person who has been dealing with gen rsd for over 9yrs & has a dental backround.... Ive learened over the years that rsd effets everything @ least for me it has including teeth probs, mine are rotting from the inaide out which is more than embarrassing cuz first thing people think is Im a drug additic which is NOT the case. That being said u could hav the start of an infection in ur jae or in a molar that may not yet show on an xray so the dentist thinks nothings wrong, antibiotics is something to consider getting. I went thru this in nov & with in 3 days half my face, neck & chin were so swelled & I was so ill I was in ER 2x in the 3 days & only 1 oral surgen would take me & kept a very close eye on me, honestly its nothin to ignore I hope this helps & if u have any questions feel free to ask I will do my best to help, have a good nite
HeidiB is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-21-2015), Enna70 (10-20-2015)
Old 10-20-2015, 02:25 PM #10
Dhall748 Dhall748 is offline
Junior Member
 
Join Date: Jan 2014
Location: Dawsonville, GA
Posts: 21
10 yr Member
Dhall748 Dhall748 is offline
Junior Member
 
Join Date: Jan 2014
Location: Dawsonville, GA
Posts: 21
10 yr Member
Default

[QUOTE=ALASKA MIKE;564207]sometimes a NTI helps with the jaw/face/cheek pain.[/QUOTE

What is NTI?
I have been off the site for a while, things went back to the normal everyday symptoms and I stayed focused on my kids. Im back, and will check in daily, hopefully. My jaw pain comes and goes, but nothing like the one I wrote about. That pain was SCARY!
Dhall748 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (10-21-2015), Enna70 (10-20-2015), Littlepaw (10-20-2015), PurpleFoot721 (10-20-2015)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Sounds like we all need a boost..... momma3love Myasthenia Gravis 8 07-21-2009 03:55 AM
Anyone know more on this? Sounds like a cure to me reverett123 Parkinson's Disease 37 05-02-2009 09:51 AM
new med sounds promising.. Sandel Reflex Sympathetic Dystrophy (RSD and CRPS) 8 05-31-2007 10:07 AM
Good grief, Has this EVER happened to any of you RSD'ers? InHisHands Reflex Sympathetic Dystrophy (RSD and CRPS) 13 03-27-2007 01:55 PM
Ok questions ot all us RSD'ers RSD_Angel Reflex Sympathetic Dystrophy (RSD and CRPS) 2 12-18-2006 08:55 PM


All times are GMT -5. The time now is 12:13 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.