Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-05-2007, 12:45 AM #1
maridane maridane is offline
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Default Just a big hello

First off, Ada, I am so very sorry for your loss, I just can't believe that Bill is gone. At least he got his deer before he went. Yes, I have been spending a limited amount of time going through here trying to see who all has made it here.

Janet, I hope that all is well with you, glad to see you back posting again. You just up and disappeared and I didn't know how to contact you. Shame on you.

Claudia, hello my friend. How has Florida been? Hope that you and Frank had a chance to soak up lots and lots of sunshine.

Joselita, girlfriend, what is up with you these days?

DebbyV Praying that you have your pain under control now. I know the mess with the LTD didn't help that one bit. I can't believe that the grandbaby is a year old now. My little one had two seizures right before Christmas and has given us one heck of a scare. My son is pushing for an MRI to be done on her in the next week or so, they had origially told him it would be a couple of months and he doesn't want to wait that long. I have the answer for all of them, I know what is wrong, what has been wrong since the day she came into this world. I have chiair, all three of my kids have chiari and my granddaughter has it too. Guess we just need the MRI to proove it...

Liz, I know I have been horrid about keeping up, just so much not going right right now you know. Will try to do better.

Dana, you have got to tell Hawaii to stop all that shaking, gets me all jell-o feeling inside worrying about you.

Debbie, thank you so much for all your kind words and for the post to Janet on my whereabouts. You are a sweetie.

Sandra, thank you so much again for the pm on the other forum. You are a God send....

Don't have the pain free time to sit and type anymore but hope to get back on here in the next few days to update everyone.... Sorry for the absence...
God BLess,
Love Marilyn

P.S. I haven't forgotten about Mike, or Mark or Allen or any of you, just will have to wait a few days for my words to you all, that includes you too Stephen... How is Deb doing?
Love to all
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Old 01-05-2007, 11:04 AM #2
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allentgamer allentgamer is offline
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allentgamer allentgamer is offline
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Default Marilyn!!!

Are your ears burning?

I was just talking to my wife about you, and these new forums, and how I really like the ambiance here. Havent seen you here, and must have missed you on the braintalk somehow.

But I have to admit I dont get over there as much because of the pain limiting how long this ole body can sit here. Im soooo glad you found us again! Darn monster getting to you too, that gets me sad.

Although seeing your post gets me HAPPY! You are the bestiest!

Thanks for helping me remember that I didnt say anything to Ada about Bill. Ada, I feel bad that I forgot, but I love ya sooooo much! And dont you forget that! I too am sorry to hear about Bill, you two are an inspiration to me. Im glad he got his deer too. I can feel it in my bones that he is in a better place now, with zero pain, and no worries.

Marilyn, this monster spread on me, took my whole right side, arm included. So now I can give ya one armed waves back!



Love ya soooo much! You take it easy, and post when ya can!
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Old 01-05-2007, 01:13 PM #3
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Shocked

Girlfriend,

How in the world are you? I have thought about you so much but lost your phone number and my pc crashed and my email addresses crashed with it, so if I didn't have it written down, I lost it.. LOL

So are you still in AR? Send me an email or pm me so we can catch up..

It is good to be back and glad to see you back..

Love,
Janet
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Old 01-07-2007, 02:28 AM #4
maridane maridane is offline
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maridane maridane is offline
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Default Allen

Are my ears burning? They have been as a matter of fact! lol There is not a day goes by that I don't think of you and how you are getting along. I hate it that it has taken even more of you and if I could I would take it all away you know.

Allen RSD has taken almost every part of my body now, the only thing it hasn't gotten is my left arm. Go figure! Between the RSD and the Chiari I have gotten to the point that I don't even walk in the stores anymore and just walking out to feed old Jake I am lucky to make it back up to the house. I think the hardest part of all that is that I have a wheelchair ramp on my back deck that kills me. The Chiari doesn't like inclines at all! lol

When we first moved to this house I thought wow, what a blessing to already have a ramp that if worse comes to worse I will not have to worry about having one built. You don't know how many times I have cussed that danged ramp last year........ I am really sick and tired of hearing every heart beat in my ears too. Like my head doesn't hurt enough! But we put on the best face that we can and make the best of a worsening situation right!

Hon I really must get off here. I could type a book but well pain just won't let me, maybe another time... You take care of yourself and that wonderful wife and family of yours and I hope to come back soon and check on everyone. God Bless you..
Love Marilyn
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