It is hard for "outsiders" to understand what someone with RSD goes through BESIDES the pain.

My husband has had RSD in his leg since 1995 - He was unable to work for quite sometime but after therapy, a pain management clinic (which I think is good for everyone - He went to Mayo Clinic in Rochester Minnesota), he finally was able to manage his pain (for the most part) and go back to work.

Bringing in an income makes an RSD sufferer feel important again, gives them their pride back, makes them feel wanted and needed.

My husband being the primary wage earner was extremely prideful and needed to do something.....anything.

The down-side to that pridefulness....

If you work at all - SS will turn you down. It will not help appealing over and over again...If you can work at all you will be denied.

I believe your family is thinking ahead - Incase there comes a day when you cant work and has your best interest at heart. I'm also sure THEY feel that you are suffering needlessly and that you would be more comfortable at home and would not be in as much pain.

What they dont realize is that for you and every RSD sufferer - feeling important, worthy, wanted, and needed over-rides the need for comfort.

There are ways to compromise - Maybe work from home? Would your boss agree to that? Or how about doing volunteer work? That way you are still getting out of the house, doing something positive and this will give you self-worth, giving you a purpose and adding meaning to your life. Be creative, the answer will come to you.

HubbyWithRSD