Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-29-2010, 10:42 PM #11
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Originally Posted by lefty View Post
Hi, MarriedtoRSD...I was just wondering about your husband's workers comp and crps. I would really like to hear the story about w/c. I too, am dealing with those monsters ! I have a pain doctor and it seems that the only pain medication that he will give is what's in his office because the others W/C will not approve. These meds don't work for me, and the side effects are worst! The only pain med that he has given me is Ultram!! I may as well eat a TIC-TAC! I was wondering how should I let my attorney know that the medications are not being given by this pain doc because each time he has tried W/C will not approve. I mean I'm talking about Cymbalta (I know it isn't for pain) and protonax for my stomarch. I've had two ganglion blocks, Lipoderm cream, Zanax, Amitrityline in the middle of the night my body will start to shake even my stomach. I feel aggatated, and start to kind of twich, and very restless in bed! I got an appointment to see him on Dec 1., I just couldn't wait until the 14th.

I'd like to know how he's making out with w/c and I hope he have an attorney?
Please PM me so we can talk
Thanks Lefty
I cant figure out how to PM anyone lol

His w/c is through Ohio. There they fully accept CRPS and RSD as an allowed condition. In fact, it could have been an injury to an old injury that caused RSD and they would have allowed it. It was a new injury however.

Im going to start a new thread to respond to you so Im not rude doing on this one as its long winded lol. Look for a thread "Response to Lefty"
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Old 11-29-2010, 11:07 PM #12
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Hi All,
I have had chronic, unexplainable, violent foot pain for 3 months now. I am trying to locate a RSD doc in MI. Does anyone know of any or how I would find them?

Thanks!
Matrix Pain Management in Saginaw Mi.
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Old 01-14-2011, 09:07 AM #13
HuskieMom HuskieMom is offline
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Originally Posted by MarriedtoRSD View Post
My husband has RSD and we moved back to Michigan a couple years ago. He started seeing Dr Papenfuse at Matrix Pain Management in Saginaw Mi. I cannot give praise to Matrix enough. Seriously, these people actually CARE about the patient and they spend as much time as needed with them. Even if we are just going in for a refill on medication the PA will sit there for an hour if we need to ask questions or discuss anything. My husband has been to about 8 different pain doctors now and we will not leave Matrix. When we go for appointments we never wait more than about 15 minutes to be seen from walking in the door, they really care about you, want to get you out of pain and make you comfortable. They also do the blocks there and they do the stimulator implant which we are fighting with work comp over and is another story all together *sigh*.
So if you need a pain dr for your rsd or crps please check them out. I just cant thank them enough for what theyve done for my husband. He has severe RSD in his right foot and ankle. He is on a pain level of 8 even on his meds. Every dr he has been seen by has said that he has the worse case of RSD theyve ever seen and Dr Papenfuse says in all his years of working with RSD has never seen such a severe case. By the way Dr Papenfuse also instructs other dr's and surgeons how to do spinal blocks and implants. He is one of the top 10 neurologists in the country. I would never recommend any dr if we werent totally trusting and comfortable with that dr. So I hope this helps someone, good luck!
I agree! Matrix is a wonderful place! My daughter who was 9 (back in 2006)at the time when she sprained her right ankle then the RSD set in. She was one of the youngest patience they have seen come through. She had Dr. Lingenfelter back then. They tried the lower nerve blocks on her and they barley helped her. From there they sent us to Cleveland Clinic in Ohio. Mind you we live pretty much in the middle of the state. We are now having issues with her breathing and her lungs and ribs are in pain. They have just ruled out any heart and lung problems. The only other thing the Dr's could say was it is probably her RSD effecting those areas. She now she's a Dr down in Ann Arbor (not too sure if I like this place - it takes at least a month for her to even get in from the time I call with any increase to her pain). Her insurance is whats stopping her from going back to CC in Ohio. They were wonderful down there to us. She had a spinal pain pump put in and that helped while it lasted before an infection set in. She is going down hill every day and its so hard to watch a child just crumble and theres nothing I can do to help her. She was playing on her JV basketball team until the breathing became so unbearable she had to sit the bench. Which is heart wrenching to watch. She is starting to miss more and more school due to her pain, not only in her rib area, but also in her knees (not wanting clothing to touch her skin). I would like to find a primary Dr for her that would help with her RSD and any other issues. Still looking for that one to happen.
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Old 12-27-2011, 04:01 PM #14
nkklynn19 nkklynn19 is offline
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Hi everyone,

I was told by 2 doctors that i have RSD. Last December i had a slip and fall accident on the ice and i broke the tib/fib in 3 places. They had to put 2 bolts, 11 pins and a plate in to hold my ankle and leg together. Since then i've been in terrible pain, Swelling and discoloration to my foot and lower leg and very senesitive to touch along with being cold all the time.

I've been too so many doctors and they all tell me they can't help me and i don't know where to turn i was told that this spreads very fast and i can tell a difference in it everyday. i hardly have any range of motion in my foot because i've tried for almost a year to get a doctor to treat me and no luck.

I live in upper michigan (harrison, Mi) and at this point i cant take it my family doctor has no idea what to do but make me wait for different doctors that all tell me the same thing (i cant help you)..

Does anyone know of any doctors that caan help that are in michigan or anywhere for that matter....

Thank You Betty
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Old 12-31-2011, 01:40 AM #15
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Nkk I will Pm you so look in your box. I used to live in MI and have some thoughts.
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Old 01-11-2012, 03:46 PM #16
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Nkk I will Pm you so look in your box. I used to live in MI and have some thoughts.
I can't figure out how you post messages, I can only do replies. Any help would be appreciated! I love this sight because people really believe you about your problems and pains!! Thanks
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Old 01-12-2012, 08:43 AM #17
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I can't figure out how you post messages, I can only do replies. Any help would be appreciated! I love this sight because people really believe you about your problems and pains!! Thanks
Lobster look up on the top right it says private messages and I will pm you.
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