Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-10-2009, 08:32 PM #4
mooseheads426 mooseheads426 is offline
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Join Date: Oct 2009
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mooseheads426 mooseheads426 is offline
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Join Date: Oct 2009
Posts: 1
15 yr Member
Default RSD in Mi

Hi Jenn,
I live in Farmington and am suffering with RSD. Not sure what has happened with you but usually some noxious event occurs that creates trauma leading to RSD. I took a fall overseas while working, suffered a Jones Fx in foot , continued to bare weight, was sent to a Seoul Hospital, misdiagnosed, told I was cured after 6 weeks in cast even though meanwhile my bone died . I continued to work overseas while walking with a cane until returning home a few months later.

In June I finally had my foot fracture rebroken and pinned (nicely fixed) but thru the entire overseas trauma, weight baring etc. now acquired RSD. My Foot Dr. spotted it and believes I am at Stage II since rapid osteoporosis has invaded my one foot and the pain is EVERYDAY and incredible. Do not get down if you have symptoms and pain. I suggest a good pain med such as "Opana" that helps me daily with this nightmare. This med doesn't get you all doped up and allows you to function.

[I]I understand there was one Dr. at Henry Ford Hospital but when I tried to schedule , I found out he retired. I have had little luck with RSD Drs. in Mi. I believe my employers will be sending me to the Mayo Clinic for help. (I broke my foot while working and my Company has have been very good to me in so many ways.)

Keep in touch and eventually I may hear of a Mi Doctor. If you truly have RSD, this is very dibilitating so try to keep calm, unstressed and don't be shy about pain meds if this helps. Also, Lyrica is another drug that will be given to help you but it takes a while to dose up appropriately. There are some side effects. You may eventually get depressed about this but don't be shy about getting help from a professional. That is normal.
There is hope and I feel your pain.
Annie
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