Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-07-2009, 08:58 PM #1
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Default What material is best for you....?

I am wondering for those of you that have the sensitive skin, what can you wear or sleep on with out irritation? I have a great pair of old flannel PJ bottoms that I wear around the house and I have a soft down blanket that I use at night. What's your preference?
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Old 10-07-2009, 09:56 PM #2
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I am wondering for those of you that have the sensitive skin, what can you wear or sleep on with out irritation? I have a great pair of old flannel PJ bottoms that I wear around the house and I have a soft down blanket that I use at night. What's your preference?

Warm, Loving, ladies skin against my back....ahhh!

Besides that,
Like you Cindi, (of course you know that couldn't possibly right, so I must be teasin') I REALLY like this stuff that a company called Patagonia (Patagonia.com) makes called "Capilene".
It comes in different "weights", silk weight is great to sleep in, no matter what weight, it ALL won't hold any moisture, if you get a sweat, it wicks it right away, so it's great to layer with. (Put Cotton over top of it). if you need it warmer...
It's a great under layer for going outside, too!
Not cheap stuff, but, it'll last you 10 years, easy! I've been wearing this stuff for thirty years... (although I've changed, and washed it occasional).

Seriously, of all the clothes and things I have for 26 years of RSD, this is the best thing I've EVER discovered!
You can get everything from Tops, Bottoms, socks, like that....

www.patagonia.com

I just got my requested catalogue in the mail today!
So, I'm happy, I used to buy myself something every year, maybe more, but well, I'm gonna start again!

Here;s the deal on how it works:
It's completely non absorbant. It Wicks ALL moisture away from your skin, and it fits, like a super comfy second skin. So, no air will get against your skin, you stay dry, and comfy, with NO DRAFTS!
I cannot say enough about this product.
I've bought less expensive things that were made by other companies, say at Macy's, (Like Jockey, or some other name brand unmentionables for men

Always come back to Capilene!
Always!

If anything (zipper for the zip necks, a seam, whatever if it breaks, even after ten years, you mail it back with a note, they fix it!).
It's simply:
The Best!

So really,
got to
www.patagonia.com
request a catalogue, and that'll give you a general idea, and you can order online, for a bigger variety.
When you go online, someone will pop up to help you.
They're the greatest company I've ever shopped with, and their product, is the best!!!!

Pete
asb

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Old 10-07-2009, 10:53 PM #3
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I am just really starting to have this problem. I have RSD (since feb 09) in my hand/arm/shoulder now. I can handle some touch but showers hurt and air hurts(?) I would think that touch would also...that normal? Someone touching my arm just feels like sandpaper.

Right now I am under alot of stress and my hand is so swollen and stuck in a fist. I have to physically open it with my other hand. This has been happening lately but then swelling will go down and I will be able to use it again. ? It is always swollen to a degree.

I love soft sweatshirts and i have a really softblanket that is like a velour on one side and a soft sheepskin on the other. I find that I have been pulling my hand up into my sleeves because of the air and cold. Wish Ugg made gloves as comfortable as their boots. I also love my moist heating pad.
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Old 10-07-2009, 11:40 PM #4
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I am just really starting to have this problem. I have RSD (since feb 09) in my hand/arm/shoulder now. I can handle some touch but showers hurt and air hurts(?) I would think that touch would also...that normal? Someone touching my arm just feels like sandpaper.

Right now I am under alot of stress and my hand is so swollen and stuck in a fist. I have to physically open it with my other hand. This has been happening lately but then swelling will go down and I will be able to use it again. ? It is always swollen to a degree.

I love soft sweatshirts and i have a really softblanket that is like a velour on one side and a soft sheepskin on the other. I find that I have been pulling my hand up into my sleeves because of the air and cold. Wish Ugg made gloves as comfortable as their boots. I also love my moist heating pad.

S/Out,
Try this Patagonia "Capalene",
they make gloves and socks, undergarments (unmentionables) too>

Try a pair of their gloves, when I was in "that stage", I did, and they saved me!

www.patagonia.com

believe it or not, Capilene used to be, and still is kind of expensive, but now, they make it from recycled plastic soda bottles!

It's the best stuff for RSD!
I wish I could buy some for everyone!

And, they even make the gloves w/o fingers, for fisherman and the like...
Do, check it out?

pete
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Old 10-08-2009, 12:22 AM #5
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I tend to pick up those fluffy, puffy socks. (RSD in foot/ankle/leg)

I am wondering about shoes however. I have been getting by with crocs this summer, even though they really aren't that great. They have been ok. I am looking for something better.

Any suggestions would be great.
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Old 10-08-2009, 12:28 AM #6
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I tend to pick up those fluffy, puffy socks. (RSD in foot/ankle/leg)

I am wondering about shoes however. I have been getting by with crocs this summer, even though they really aren't that great. They have been ok. I am looking for something better.

Any suggestions would be great.

Try looking for a "local, independent" shoe store, every town has one!
Not "Foot Locker" or, like that....

Then see what they've got. ask around, especially in your pharmacy! They'll know!
You can always find a "Medical Supply" to get the "Green Gel soles". I'm sorry I forget the name, but I'm ready to go buy a pair myself. 20-25 dollars. They make your shoes so wonderfully comfy!

Oh, anyway, these "local independents" usually sell, Merrill, New Balance,
and Timberland. (The "SPECIAL" ones), that you don't find in the mall!

Good luck!

Don't forget the internet!

pete
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Old 10-08-2009, 06:48 AM #7
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Egyptian Cotton sheets the more they are washed the softer they become.
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Old 10-08-2009, 07:27 PM #8
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Quote:
Originally Posted by ams0310 View Post
I tend to pick up those fluffy, puffy socks. (RSD in foot/ankle/leg)

I am wondering about shoes however. I have been getting by with crocs this summer, even though they really aren't that great. They have been ok. I am looking for something better.

Any suggestions would be great.
Shoes are starting to become an issue for me too.
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Old 10-08-2009, 08:08 PM #9
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Default Hi,

My Dr. recommended New Balance shoes so the kids got me a pair about 2 years ago and I like them. I have tennis shoes. Got them at JC Penney. I also have Plantar Fascius in my feet and they do seem to help.

In the daytime, I have to wear stretch pants. I only wear stretch jeans for a short length of time due to the pelvic pain. I also can't sleep in pajamas due to the pelvic pain. I sleep in gowns. If I get twisted up in PJ's then I make my pelvic pain worse.

I do like my electric blanket. It does help warm my legs up after awhile.

There are certain types of sheets I can't sleep on, I give them away if I can't. It's hard for me to find a brand I like. I don't like any from Wal-Mart. I get those from Penneys also.

I think it's just a matter of trying things until you find what works. The right material is the key but what works for one doesn't always work for others.

Ada
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Old 10-10-2009, 12:12 AM #10
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Default familiar subject..

Hi,
I wear soft soft fuzzy things, and I have the softest sheets (they are fuzzy too), loose fuzy socks, and crocks in the summer (with bling on em) and extra loose boots that open right up in the winter.
It is a challenge every winter for boots because I always seem to trash them somehow.. and there arent many boots that work for me because my right foot dosnt tollerate a anything much on the heel since a car's tire sat on it, damn car.

Ohh and I have a heated matress pad to keep me warm, I have a single now for my hospital bed but 5 years ago I bought a queen one for my big bed that had duo controlls so as to not broil my partner lol.

Sandra.

Pete Hi, I went into that link you posted for clothes and it asked me what country I was from and then it did not even have my country (Canada) listed.
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