Thank you everyone so much for all the help and suggestions, I will take everything I can get.

I did end up going to the ER yesterday but didnt bring up the hearing thing as they had enough to deal with, with my flair. I waited to long in my flair to go to the ER and my bladder shut down so was more focused on that then my hearing. I have to call my doctor today anyways to talk to him about my bladder so will talk to him about my hearing and see what he can do.

I will get this taken care of as soon as I can, I sure dont want to loose my hearing at 21 just because I didnt tell my doctor.
Thanks again everyone so very much and I will let you know what the doctors say when they find out whats going on.

Niki

Hi. I had this ear pain and pressure so bad. I went to the ENT doctor and they found nothing. Then I went to my neuro who did an MRI of my brain and ear canal which also found nothing. I have severe eye condition and often it feels like the pain and extreme pressure like it will explode is starting from the eye. They were concerned with something pressing or fluids and it turned out nothing. I am not sure if it is from my meds now for the rsd or just time but it has got a lot better. I still have ups and downs but not the daily crying pain. I had to accept that for me there was no dx same with my eye condition where I have been to 11 eye specialist,neuro,etc etc and 50 plus apts. If you don't get answers or relief I would go to a neuro. There is such a mix from the doctors I have dealt with about rsd in these areas said no not in the eyes.I still have heard others have it there and no one can figure out why I have such high pain as blepheritis and dry eye does not cause it this high and that was the dx. Anyhow hang in there and feel better

I agree with Mslday and Crpsbe, Marleen. Also, I agree that even though your doctor is away, he must have someone "on-call" for his patients.

So often RSD patients are told that every ailment, pain, or discomfort is RSD, without any test being ran..just by deduction and the fact that RSD is present in the body.RSD is used as a scapegoat for what the docs can't explain, or fix.

http://i2.tinypic.com/6opjng7.jpg

:grouphug:,

Thanks again to everyone for all your help and suggestions!

Daniella, I am sorry you to had issues with the ears and eyes and that no doctor has found a reason for it. For your eyes did you ever see a neuro-opthomologist? I had very bad problems with my eyes also when my RSD went full body, I too felt as if my eyes were going to come out of my head the pressure and pain was so bad. I ended up seeing a neuro-opthomologist who found in the back of my right eye all the nerves were swollan and I had several hemorrages. He couldnt do much as the damage was already done, it has cleared up a bit as in the pain but every once in awhile it comes back. I understand what you mean with the mix of doctors they all have different reasons and solutions for everything, just for my RSD in the past 2 years I have seen over 98 doctors in 9 states all of different specialties so know what you mean about the doctors.

I will listen to all of you and call my doctor. When it comes to emergancies all his patients have a contact # where we call and leave a message and will be sent to his cell. From there he will contact us no matter the time or place, he does have a doc on call if we need help now and he also has talked with all the ER staff at my local hospital incase I am having problems. I have a really hard time seeing any other doctor unless I am reffered by my doctor as I have been to so many and am tired of ending up with idiots who think I just need to suck it up. My RSD has also gotten a little complicated and my doctor doesnt like any doctor touching me until he speaks with them as I can get worse very easily and fast. I understand what everyone means when things get written off really fast as just RSD when it could be something else, it is the doctor I have now that found a few things I was told was RSD was actually something else which I needed different treatment. I am calling my doctor right after I am done writting this and will leave a message and see what goes on.

Thank you all so much, I appreciate getting so much help!
Pain Free Hugs to All!

Niki

Thanks for your thoughts. I am diagnosticly tested out. I have had basically every test possible for my eyes. All I know is the more they play with them and rx eye meds/drain etc the worse they get. The only thing that may be helping is the oral meds for the leg pain and the climate now.
What happened after the call? You are like me so many doctors and with that comes a mix of thoughts. I too wish they would not just brush things off and look at new conditions as that new. I tell my mom one day I feel I will think something is RSD pain and it won't be and I will have a major issue from letting it go. Just try to stay present though and hopeful.

Hi,
 

I was wondering how many of you are dealing with Fibro. Fibro causes eye problems and hearing problems also. A friend of mine went to the Dr. to get new glasses because she thought her eyesight was getting worse and they weren't. Her Dr. told her it was most likely from the Fibro. Fibro seems to mess with everything about us and cause other problems too.

ada