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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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09-14-2009, 10:08 AM | #1 | ||
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Magnate
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Now these are just things I have been told through the doctors and things I have read etc. Everyone is different. When I was at Cleveland Clinic the pain pump was suggested as one of the last options to try. Now the scs I was suppsed to try but since I had 2 procedures that increased my pain my doctor felt the scs may as well or may not work if the pain has been there too long and it is in my brain too much. I think more doctors for RSD do the scs then the pump since many are not big on narcotic meds that I have seen and how many have said in the long run it makes one more sensitive to pain and needing more. Now I am not saying people who take narcotics here are wrong because at this point I have no clue and one has to get through the day in the best possible way for the best quality they can get. Just through the many doctors I have seen.
I am sorry for all you are going through and I know how hard these choices are. |
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"Thanks for this!" says: | Dew58 (09-14-2009) |
09-14-2009, 12:09 PM | #2 | ||
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"Thanks for this!" says: | Dew58 (09-14-2009) |
09-14-2009, 12:54 PM | #3 | |||
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, for the knowledge that everyone shared in this post.
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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09-16-2009, 07:03 AM | #4 | ||
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09-14-2009, 01:01 PM | #5 | ||
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Magnate
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Hey no problem.I just reread this and I was told by my doctor before the scs was ruled out that the tens would not work for me since I can't even allow a finger touch on me. May I ask what part of FL you are in? I am back in Palm Beach county that is why I was asking. Hang in there and I understand too how this condition isolates us. I wish there were more concrete answers and direction.
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09-14-2009, 07:47 PM | #6 | |||
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i think you are both right the pump and scs should be usesd as a last resort option i think that some get these way to early when other things can be tried . i had already had rsd almost 6 years and this is when i had pump put in after i became very allergic to morphine. i dont think that it is right for everyone. i am one of those that has done everything besides Ketamine. because im not a candidate and im just not willing to risk my life for it. IMO
carrie
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hope this finds all in less pain . rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,, please check out our website to help bring awareness to RSD! . |
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"Thanks for this!" says: | CZZ74 (09-16-2009) |
09-16-2009, 06:59 AM | #7 | ||
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09-15-2009, 12:01 AM | #8 | ||
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I have a SCS and the trial actually worked less than the permanant. For me, I have huge family support and my doctor actually changes out medicines seasonally. For instance more in winter than summer or visa versa. My SCS covers abou 40-50 percent of pain. Which is HUGE when you look at the full scale of 100%. It is a HUGE lifestyle change as I am young and was once an athlete. I have mine in my neck which is harder because it goes all the way down your back instead of just the lumbar spine. Everything worked out wonderfully and I decided to put it in. I never considered a pain pump, as my PM doctor told me the SCS was a option over more medications. I have had mine in for only 3 months, but those 3 months have been great over the incision sx pain from the implant.
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09-16-2009, 07:01 AM | #9 | ||
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09-16-2009, 09:21 AM | #10 | ||
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Magnate
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Hi I am sorry that you are feeling bad. I would love to meet you oneday when your near. Please take care and hang in there. |
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"Thanks for this!" says: | CZZ74 (09-21-2009) |
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