I have interstitial cystitis too, and was diagnosed with it 13 years ago after 2 frustrating years of trying to find someone who knew what was wrong with me. I was diagnosed with RSD 2 years ago, and one of the PM docs I saw told me that RSD has recently been found to be RSD of the bladder. He said that becasue I already had IC, I could have been predisposed to RSD, and that could be why I developed it after my surgery. I am able to manage my IC with diet, but I have found that the Neurontin that I take for RSD does help with my IC pain. It does nothing for the urgency and difficulty getting my bladder to work when I want it to, but the pain relief is nice.

Sorry I don't have any solutions for you, but I agree that you need to find a good urologist. Good luck!!