I would go to a Urologist about this. As someone said yesterday, we can't chalk everything up to RSD.

I have Interstital Cystitis and spent years getting the pain to calm down. I also saw a new pain specialist last year that had to stretch my uthera because he said it was the size of a 7 year old. It did help with me losing more urine when I went to the bathroom but not with how many times I go which is way to many and the pain.

It seems that a lot of times with RSD we do come up with more things going on along with it that is not connected to it.

Ada

In the past year I did see a urologist at the Cleveland Clinic, she told me it was the RSD and that she has many patients having the same issue due to RSD but she didnt give any ideas on how to manage it when it shuts down. It just gets so fusturating and wish there was more I could be doing to keep it running. Next time I go into a flair I will just go straight to the ER, I have told myself this before, if I dont listen to my body when it screams ER now then I end up paying for it. I am going to call my doctor and see what he says, I am doing the ketamine infusions every week and I am hoping when I have my treatment it will help get things back on track.

Niki

Dear Niki.... I hate to be the bearer of negative tidings...but the ketamine may be a factor with your bladder:

http://en.wikipedia.org/wiki/Ketamine

This also...
http://www.ketaminebladdersyndrome.com/KBS/Welcome.html

on RSD and the bladder:
http://74.125.95.132/search?q=cache:...&ct=clnk&gl=us

Thanks for the info, I will look into everything and ask my doctor. I dont think the ketamine is the reason my bladder is the way it is as my bladder was like this 2 years before starting the ketamine. I have been doing the ketamine now for 8 months and the bladder thing has only happened twice since then but each time was from a flair, before the ketamine my bladder shut down about 8 times in the 2 years, everytime it shuts down is when my pain is at its all time high.

I am going to ask my doctor about all this though just to make sure its not going to make things worse. I really cant stop the infusions because without them my life becomes unlivable, without the ketamine I am in ER's every 2-3 days but with it its only like every 2 weeks which for me is really good. I have failed every other treatment so I will cross my fingers the ketamine isnt making things worse cause I really dont know what I would do without it.

Niki

I would try another Urologist. I went to the U of Co. hospital several times before I figured out that I was a guinea pig to them and have went to 3 Urologist around here. Two in the same office, I liked the second one and still go to him. Then the one I saw last year was a Pelvic Pain Specialist so sometimes you have to find that right one that can diagnose you and help you. As far as chalking things up to the RSD that does happen a lot with some Drs. I learned a long time ago that we know our bodies best and the Drs. tend to chalk it up to what they want to if they don't know what is going on.

Also, when you are in so much pain from the RSD, then it's very hard to distinguish between what is going on in other areas until the RSD pain is calmed down some. I hope the Ketamine works for you. It is possible that it is making your problem worse even if it didn't cause it.

My system started shutting down last year. I couldn't go to the bathroom. I was constipated and backed all the way up to my breastbone. I have since been put on Mitformin to help with getting it working again. My Dr. thinks it was from some of the meds I took. I think it was the Lyrica. It did a job on me. Sometimes the meds do make matters worse.

I hope you find some answers soon.

Ada

Niki, as you know I was on ketamine for a very long time , every two months up to the coma and then the whole start up agian, two weeks, monthly then back to my monthly schedule for a week. This went on from 2005 until 2008. I was hospitalized on three major occasions to get 10 pounds then 13 pounds of fluid either out of my legs or off my back. Yes it was edema, but my bladder was not working either. now that i do not have the infusions, my edema has decreased, I do however take a water pill to encourge my bladder to empty other wise I would have major problems still. It is HCL- it blocks calcium to the kidneys. Now unfortunately when I go in - i'm there for a half hour, but i have no feeling of my bladder emptying. Just the urge to go, I do belivie it is from years of ketamine infusions. but i dont know for sure.cz