Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-14-2009, 11:41 AM #6
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dreambeliever128 dreambeliever128 is offline
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dreambeliever128 dreambeliever128 is offline
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Default Hi Niki,

I would try another Urologist. I went to the U of Co. hospital several times before I figured out that I was a guinea pig to them and have went to 3 Urologist around here. Two in the same office, I liked the second one and still go to him. Then the one I saw last year was a Pelvic Pain Specialist so sometimes you have to find that right one that can diagnose you and help you. As far as chalking things up to the RSD that does happen a lot with some Drs. I learned a long time ago that we know our bodies best and the Drs. tend to chalk it up to what they want to if they don't know what is going on.

Also, when you are in so much pain from the RSD, then it's very hard to distinguish between what is going on in other areas until the RSD pain is calmed down some. I hope the Ketamine works for you. It is possible that it is making your problem worse even if it didn't cause it.

My system started shutting down last year. I couldn't go to the bathroom. I was constipated and backed all the way up to my breastbone. I have since been put on Mitformin to help with getting it working again. My Dr. thinks it was from some of the meds I took. I think it was the Lyrica. It did a job on me. Sometimes the meds do make matters worse.

I hope you find some answers soon.

Ada
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