Like some of the others, I also have IC (interstitial cystitis). I have RSD in my pelvis and legs and have noticed when my IC flares, it triggers an RSD flare and vice versa.

(*** I had IC previous to the RSD/CRPS in my pelvis, like the previous poster, although it took me years to find a dr who correctly diagnosed my bladder issues as IC*** )

One of the things that have really helped me is starting a medicine called Elmiron. Its a new medication that is used for IC and helps reduce bladder inflamation, spasms, and the pain. Elmiron has been a Godsend for me. I went from going to the bathroom constantly-- and having the "urge" to go (-- even though I couldn't always physically "go" ) and pain from the spasms to being a lot more comfortable. It might be something to ask your Gyn or urologist about.

Like one of the other posters mentioned, I too use a Lidocaine jelly (prescription) in my bladder and Vaginal areas when needed and especially during my flares. It doesn't exactly help the pain, but it eases a lot of the burning sensations and numbs the areas so I am a lot more comfortable going to the bathroom and after I go. Something to ask your doctor about.

Other common medications for it are some of the anti seizure meds and other anti depressant medications (Neurontin, Elavil, Pamelor, Lyrica, etc)-- which are also used for nerve pain. They never helped my "crampy" and frequency, but they do help the nerve pain (I am currently on Neurontin and Elavil for RSD).

I know it isn't easy, but remember you DO have options. Talk to a good URO-Gyn (a dr that specializes in womens pelvic pain and bladder issues--- sometimes they are certified in Gynecology, sometimes Urology) and see what your options are. Hang in there and don't give up !

L2L