Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-16-2009, 09:19 AM #17
daniella daniella is offline
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Join Date: May 2007
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daniella daniella is offline
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Join Date: May 2007
Posts: 2,998
15 yr Member
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I saw the worst pain doctor at UCLA. Unreal to me. Anyhow I have seen a couple of neurologist cause I have PN as well. I have heard the frustration of many who have issues with neuro's. Though the one I saw the most is not a very good comunicator and made a mistake on me before my rsd dx he did run every possible test and I did get my PN dx too. From what I found is if it is not an issue coming from the brain or spine they have no clue It seems to have to be concrete in a test result rather then them looking outside the box. I will say often these top hospitals I have been to are not the best. They give what I call drive through service. Your in and out in a flash. Sometimes just because a place is well known does not mean there the best it is hard to know. I encourage as I found my best doctor at a teaching hospital though obviously he was not a student and was the head of he pain dept but by calling the pain clinic there and explaining my story. Hang in there
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