I saw the worst pain doctor at UCLA. Unreal to me. Anyhow I have seen a couple of neurologist cause I have PN as well. I have heard the frustration of many who have issues with neuro's. Though the one I saw the most is not a very good comunicator and made a mistake on me before my rsd dx he did run every possible test and I did get my PN dx too. From what I found is if it is not an issue coming from the brain or spine they have no clue It seems to have to be concrete in a test result rather then them looking outside the box. I will say often these top hospitals I have been to are not the best. They give what I call drive through service. Your in and out in a flash. Sometimes just because a place is well known does not mean there the best it is hard to know. I encourage as I found my best doctor at a teaching hospital though obviously he was not a student and was the head of he pain dept but by calling the pain clinic there and explaining my story. Hang in there

Daniella, you hit the nail on the head describing Neurologist. Not thinking outside the box and drive through service.

I saw 4 or 5 and none of them really believe in TOS. IF it doesn't show on the test then you ain't got it. I believe it's their motto.

I do have a Neurologist now that only deals with MS. He did deal with both MS and RSD and quit the RSD. I never ask him why though. I really like him and he knows his MS but I think only dealing with one illness most likely helps him with being a good Neurologist.

I am definatly not a fan of Neurologist. I also spent a lot of time at the University Hospital in Denver and they are a big joke. I would never go to a learning hospital again. I believe even if they know what is going on with a person they still want to use you for a guiena pig instead of following any guidelines of what is used for illnesses. I saw about 7 different Drs. there for different medical illnesses and not one was worth going back to. If I wanted to be a guienna pig, I would volenteer for it.

Ada

I'm so sorry you've had such bad experiences with neurologists and pain mangement drs !

I've had both good and bad experiences with both types.

The dr who diagnosed my RSD/CRPS was a wonderful neurologist who was also treating my epilepsy. He had a lot of knowledge about it and knew almost right away what was going on-- after years of me being in pain. He treated the RSD/CRPS in my stomache with something relatively experimently (Botox), but I was willing to try it and it helped. However, after a while, we both moved and he is no longer my dr. My current neurologist is good, also has knowledge of RSD/CRPS, but prefers to not to treat it (although she did confirm the diagnosis). She wants to stick with treating my Epilepsy and other neuro issues and let a pain management specialist deal with the RSD/CRPS.

*** please know that I do not blame my current neurologist for not wanting to treat the CRPS/RSD--- she has her hands full with my epilepsy and genuinely wants me to recieve the best care for each issue, and I admire her for that ***

I am now on my 3rd pain management dr. The one I was seeing previously was at a large and "one of the most renowed medical centers" in California. However, that physician basically discounted both neurologists diagnosis, seemed completely unwilling to do Botox in the mannor my diagnosis neurologist did (hence, I had complications I'd never had before) nor took the suggestions of the residents or listen to anyone else's ideas. He was somewhat condescending to me, and didn't listen when I complained of side effects, flares, etc and was only avaliable one day a week. What I learned from that, is that ultimately, that teaching hospital and "renowned medical center" wasn't the best place for me. My current doctor, not at a teaching hospital, seems a lot more pro active, treats me with compassion and really seems to listen to me.

I am so sorry your having to go through all of this. It is so frustrating, but keep trying. There are good doctors out there-- but sometimes it seems to take forever to find them !

L2L