Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-16-2009, 09:42 AM #1
bbpoolgurl bbpoolgurl is offline
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Thank you for the thoughts and advice.

I do have a lawyer, we have had one for a while. We have won against them before, which is why we thought we would win this. Yes, you are usually supposed to have the perm SCS after the trial, and I was scheduled for the perm SCS last December, but 2 days before the surgery I got a phone call that WC was refusing to pay, and ever since then it's been a fight.

Quick question, I see on the lefthand side underneath the usernames you can change your mood, how do you do that?
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Brittany

Diagnosed RSD/CRPS November 2006

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"Don't tell God how big your storm is, tell your storm how big your God is."

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loretta (09-17-2009)
Old 09-16-2009, 09:58 AM #2
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Hi Brittany...

When you log on, there should be a "mood" command just under your name in the upper right. Click on it, and a menu will open and you just select one.

It may not show up until you have 10 posts. I am not sure about that feature. It should be right under "private messages".
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Old 09-16-2009, 12:21 PM #3
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Thank you Mrs. D! I figured it out
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Brittany

Diagnosed RSD/CRPS November 2006

.

"Don't tell God how big your storm is, tell your storm how big your God is."

.
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Old 09-16-2009, 12:29 PM #4
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Good for you! There are many nice features on NT for the members to enjoy. I see you are already putting up graphics too.

If you get stuck, you can PM me or leave me a visitor message,
or if it is a "BIG" problem, you can visit our Computer forum.

I am not a swift computer person, but I can do most of the things here and try to help. Large problems like cookies/cache issues etc, are best asked at Computer forum.

If you like to make long posts, you may be auto logged out when you least expect it. So when you log on, click the little box, "remember me" and you'll be insured enough time to type a while.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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loretta (09-17-2009), SandyRI (09-20-2009)
Old 09-16-2009, 01:12 PM #5
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Brittany,

welcome to the group. Everyone here is wonderful and very caring. This is the place to ask your questions and to vent when needed, cry when needed, and hopefully laugh when needed. I've had rsd for about 5 years or so, have had 2 scs units implanted and removed, and have been on almost everything out there for pain. I'm currently on Opana Er, which really does a great job helping with the pain. I'm looking into a pain pump as I would like to drive again. With pain meds, i've opted out of driving. I would never forgive myself if something happened because of me.

take care
Gentle hugs
Mary
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loretta (09-17-2009)
Old 09-16-2009, 01:20 PM #6
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Hello Brittany,
It's nice to meetcha, although I'm sorry it's this way..
There are many fine people here, I'm still sort of a newbie, and I find lots of support and friendship here.
I hope that you're able to keep moving, RSD is a "use it or lose it" type thing.
I've had it since I was 27, and I'm 53 now. In the meantime, a 2nd accident gave me more injuries and a brain injury. (That's when my life really took a turn for the worst), I'm really having difficulty just accepting, and believing that this is the "new me".

So, keep your faith, I'm glad you have great fiance', and I'm sure you'll be a great Mom!
Keep your dreams, and don't let the injury or pain change them or You!

Be Well!

Pete

ASB
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loretta (09-17-2009)
Old 09-16-2009, 02:08 PM #7
bbpoolgurl bbpoolgurl is offline
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Thanks everyone for the encouraging words- it really helps to uplift me, knowing I am not alone.

Yes, I spent a good part of the morning playing around with my signature and figuring out how it worked Knowing me, I won't be able to keep one graphic or picture for too long!

Mary, I completely understand how you feel. I got in a horrible car accident back in April, where I totalled my car and had to be taken to the ER. Luckily, no one (including me) was hurt, but after that, my family decided that while on the opiates, I should not be driving. So I have not driven since April, and rely on others for transportation. I think that has been the hardest thing, for me- losing my independence. I was a student at the local university; now I can't go back because not only can I not drive, but the meds have wiped my short term (and some long term) memory. I rely on others for rides to anywhere I need to be. I am only 23! I am having a really hard time accepting that I need help from others especially at my church from the older members, when it should be me helping them out. I cannot work now, so I spend time at home all day while my fiance works.

It's also been really hard on me because it shows you who is there for you and who isn't. I have lost friends over this, my family is not as supportive as you would think a family should be (that's the reason I live with my fiance- he can care for me better than my mother could, because she's "too busy with work, and can't take time off". Her words)...it's just affected every part of my life, every aspect.

I know I probably have some clinical depression, but since I have no way of getting to therapy appts during the day, and my dr doesn't do evenings, well, there goes that. We tried to set up rides for me, and it never worked out.

It's just such a long journey...
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Brittany

Diagnosed RSD/CRPS November 2006

.

"Don't tell God how big your storm is, tell your storm how big your God is."

.
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loretta (09-17-2009)
Old 09-16-2009, 09:40 PM #8
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keep smilin keep smilin is offline
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Confused Welcome Brittany..

Quote:
Originally Posted by bbpoolgurl View Post
Thanks everyone for the encouraging words- it really helps to uplift me, knowing I am not alone.

Yes, I spent a good part of the morning playing around with my signature and figuring out how it worked Knowing me, I won't be able to keep one graphic or picture for too long!

Mary, I completely understand how you feel. I got in a horrible car accident back in April, where I totalled my car and had to be taken to the ER. Luckily, no one (including me) was hurt, but after that, my family decided that while on the opiates, I should not be driving. So I have not driven since April, and rely on others for transportation. I think that has been the hardest thing, for me- losing my independence. I was a student at the local university; now I can't go back because not only can I not drive, but the meds have wiped my short term (and some long term) memory. I rely on others for rides to anywhere I need to be. I am only 23! I am having a really hard time accepting that I need help from others especially at my church from the older members, when it should be me helping them out. I cannot work now, so I spend time at home all day while my fiance works.

It's also been really hard on me because it shows you who is there for you and who isn't. I have lost friends over this, my family is not as supportive as you would think a family should be (that's the reason I live with my fiance- he can care for me better than my mother could, because she's "too busy with work, and can't take time off". Her words)...it's just affected every part of my life, every aspect.

I know I probably have some clinical depression, but since I have no way of getting to therapy appts during the day, and my dr doesn't do evenings, well, there goes that. We tried to set up rides for me, and it never worked out.

It's just such a long journey...
It is so nice to have you on board with us..As you have read..this is a very support "family" networking out to help eachother.. We are tied with our RSD, sharing and really finding many likeness in our illness.. I say it again..RSD is a 4 headed animal.. it is relentless. I have been suffering 2+ years, cold turkey as my body won't allow any help from pain meds, they make me ill... I only take Ambient, which I recently began for sleep.

My biggest concern for you is waiting too long fro your SCS, I understand, it's out of your control, but as time passes it can be difficult to receive positive results for the SCS to help you due to the progression of RSD. Again, I am sorry as it seems this has definately been an uphill battle for you... I hope it helps you to know you are not alone in this relentless fight.. Stay hopeful and never ever give up!! Thats the last thing we can do!!
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