Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-18-2009, 10:55 PM #16
love2laugh love2laugh is offline
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Join Date: Jul 2007
Location: California
Posts: 116
15 yr Member
love2laugh love2laugh is offline
Member
 
Join Date: Jul 2007
Location: California
Posts: 116
15 yr Member
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Welcome to the group Brittany !

I am a 27 y.o. with RSD/CRPS in my legs and pelvis. I've broken both feet twice, which triggered the RSD/CRPS in my legs and the RSD/CRPS in my pelvis was triggered by complications from pelvic surgery last year. It took me years to get a proper diagnosis with my feet and several months with my pelvis--- a wonderful neurologist finally put all the peices together. Its been bittersweet-- at least I finally know what is wrong.

I am currently being "treated" by a pain specialist with Botox in my stomache/pelvis; and a combination of anti siezure medications (i also have epilepsy, so my anti seizure meds serve two purposes, lol ) and Elavil. My new pain specialist is trying to figure out a medication to help with my flares and intense breakthrough pain.

My pain specialist also mentioned the possibilty of a SCS in the future.

Anyway, my husband (who is wonderfully supportive even though he doesn't quite understand RSD/CRPS) and I are currently TTC (trying to concieve)--- so feel free to private message me if you want to talk anytime.

L2L
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