Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-25-2009, 07:50 AM #1
bassman bassman is offline
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Remind me to never move to Pennsylvania! I was in Philly for a conference three years ago, and we had a cold rain for all four days. The locals tried to convince us that it is not always like that, but after reading all of this, I am not sure...

Hope everyone is doing better. If you want, visit Wisconsin. We are having a great Autumn!

Mike
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AintSoBad (09-25-2009), hopeful (09-25-2009)
Old 09-25-2009, 10:42 AM #2
stressedout stressedout is offline
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momzpeachy: I am having the same problems. I used to be able to say that mornings were my best time of day but lately I am only sleeping 2 1/2-3 hours at night and get up feeling horrible. My arm has been so swollen lately, my fingers look like sausages. The tremor is worse and it jerks constantly. It will get better during the day if I don't do much but then bad again at night. I am in northern NJ. I love the fall (ussually) but I am so worried about winter. As it is I have to keep my arm covered all the time and I find I have to keep my hand covered too now. I wear a glove some days. I feel stupid wearing a sweatshirt and glove on an 80 degree day.

Sometimes I have an attitude that I am going to push through and do something to get back some sort of resemblance of what my life used to be like even if I pay for it later. It would be worth it. Then other days I feel beaten. I want a purpose in life. I am wc and can't do what I was doing before so now I am waiting to see what wc will do. My kids are afraid to hug me. My husband doesn't say too uch but I know this has put alot on him. I feel so bad seeing what this is doing to them.
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AintSoBad (09-25-2009)
Old 09-25-2009, 02:24 PM #3
AintSoBad AintSoBad is offline
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AintSoBad AintSoBad is offline
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I can't do more than agree, with my friends from PA.
It is a great state, but, we certainly do have 4 seasons! (Often with 3, in one month).

What was it that W.C. Fields said about Philadelphia?

My past two days have been heckish.
Aches, Burning, sleep reversals, and, can't even get anything done. (I'm praying for enough relief to get a bath/shower..

I don't think any of us are loosing our minds, but it is awful to feel, and read how we can't do what we once did, and this ever lasting search, for our new identity.

Maybe, it's just that we need to look at it as we've been given a new, unexpected path to travel. We need to learn to navigate it, as we go?
God put it there, he'll certainly lead us through. (What's it? If he brought you to it, he'll get you through it!)

I hope and pray, that all might feel some relief, before long, it IS Friday, afterall!

Pete
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bbpoolgurl (09-25-2009)
Old 09-25-2009, 05:21 PM #4
hopeful hopeful is offline
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Hi Pete,
I tell myself often God must have some plan to send RSD our way. Somedays (lately) I just wish he would show me what the plan is. I, like you, am searching for my new identity. I am having a really hard time finding it though. I was always so active and then RSD hit and has quickly stopped me in my tracks.
You are right PA is a great state and other then not liking winter I never thought too much about the seasons. I grew up here.
Thank God for Fridays!!! I hope all of us get some relief after the rain this weekend.
Hopeful

Quote:
Originally Posted by AintSoBad View Post
I can't do more than agree, with my friends from PA.
It is a great state, but, we certainly do have 4 seasons! (Often with 3, in one month).

What was it that W.C. Fields said about Philadelphia?

My past two days have been heckish.
Aches, Burning, sleep reversals, and, can't even get anything done. (I'm praying for enough relief to get a bath/shower..

I don't think any of us are loosing our minds, but it is awful to feel, and read how we can't do what we once did, and this ever lasting search, for our new identity.

Maybe, it's just that we need to look at it as we've been given a new, unexpected path to travel. We need to learn to navigate it, as we go?
God put it there, he'll certainly lead us through. (What's it? If he brought you to it, he'll get you through it!)

I hope and pray, that all might feel some relief, before long, it IS Friday, afterall!

Pete
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AintSoBad (09-25-2009)
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