Just not having a good day

hopeful · 09-25-2009, 05:11 PM

Hi Momz,
I am sorry to hear you are having such bad pain. At least I know I am not crazy it must be the weather. Like you, I am not able to tolerate anything too cold or too hot. I hope your MRI results come back ok.
I understand what you mean about taking the meds. I have an appt with my neurologist in Oct I am hoping he might change my meds because I don't think they are working as good as they use to. Or else the RSD is even getting worse.
I know it is easy to say not to worry too much about the ketamine treatments. I was really scared before I had the first ones. They give you other meds to counteract the side effects. Your pretty much wiped afterwards but they weren't that bad. If you're going to Dr. Schartzmann he is great and the staff in that unit are also terrific.
I did get some relief. I haven't had a treatment since the beginning of Aug. My insurance decided they are not paying and I am fighting them. I paid for the last one myself, unless I win the 2nd appeal, I will pay for the one I have scheduled for Nov.
Hopefully, once we get past the rain this weekend things will get better. I hate to say this but I am dreading the winter. Have a great weekend. At this point Nevada sounds good!
Hopeful

Quote:

Originally Posted by momzpeachy

Hi Hopeful

I too am in PA and been having a rough time. The weather has been changing so much and that sure doesn't help anyone with RSD. The humidity went up the last couple days once again and that made me just miserable. My neurologist said that RSD patients do not tolerate temperature change well. That's a definite! I seem to do best when it's in the 70's with no humidity. I can't seem to tolerate cooler than that or warmer than that. It's crazy. I have been having trouble with everything these last few days. My headaches are severe, the pain is high and my vision is off, etc, etc. My back is killing me and they even sent me for another MRI the other day to check on that since I had back surgery last year and it hurts around the same area. I can totally feel your pain as I am feeling the same way.

I am now scheduled for my first run of ketamine treatments next month and I am also pretty nervous about that. I am hoping this is going to work. I'm just pretty scared about going through the treatment. I'm so tired of taking all these meds though. I am on neurontin, cymbalta, fioricet, baclofen.

Hope your weekend is a little better but rain is on the way for Saturday and we might be pretty miserable. I know rainy days are not good for me and it looks like wet, cooler days are ahead..yippeee....want to move to Nevada? lol
Take care
Momz

Site Navigation

NeuroTalk Online Support Groups

Just not having a good day

NeuroTalk Forums