Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-04-2007, 04:42 PM #1
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Through lots of work I am in remission in my arms and hands. The only time I see the RSD flare up is when the barometer changes and then no meds on earth helps with the pain.

I have had blocks that worked wonders. If the blocks work the first time then use them again. I'm on a minimal Methadone dosage. I have to go up on it when mine is worst but it still doesn't help at that time.

I am dealing with my fingers spasming up now and I just took pictures of them awhile ago. I want to show it to my hand surgeon. I honestly don't know it it's the RSD or a pinched nerve somewhere. It just started back up about a month ago after not dealing with it for about 5 years. I'm wondering if what Claudia is talking about her husbands hand is going on with mine.

I do think we have had one or two on here before that said they are in complete remission. Don't remember who but some of the others might remember.

Welcome to the board.
Ada
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Old 01-04-2007, 07:30 PM #2
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Hi and welcome, Denise,

Yeah, we've had a very few people on this and the previous board who have had a remission; thing is, once people have gone into remission they aren't usually here to tell us about it (fair enough, if you can just get on with life, good on you!) but sometimes they do. Maybe someone will pop in; and sometimes, like Lisashea, they found it was a pinched nerve instead, or something mechanical (and so fixable) all along... seems it can happen, just doesn't very often.

Hope we can help you some, thanks for sharing your story with us,
all the best
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Old 01-04-2007, 08:21 PM #3
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So you do have pain when the barometer changes??!! I live in Palm Springs and have been thinking about moving to Colorado where I have some family who can help me. Maybe a cold climate isn't a good idea!

But I have found that air conditioning causes me MUCH pain, but when I'm wearing a jacket in cold weather I'm OK.

How long does it take you to recover from a "barometer change"?
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Old 01-06-2007, 09:22 PM #4
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Default Barometer changes?

[QUOTE=dreambeliever128;55877]Through lots of work I am in remission in my arms and hands. The only time I see the RSD flare up is when the barometer changes and then no meds on earth helps with the pain.

Hi Ada!

Thank you for the "welcome"! You all sound so encouraging. I really appreciate this group!

I guess I didn't get my response to you correctly yesterday. I live in Palm Springs area & due to "work comp finance fiascos" I've been trying to get moved to Colorado where I have a sister. But she has Fibromyalgia & she's having SEVERE problems due to the weather...in particular...the barometric pressure (at least that's what she thinks it is).

Until I saw your note I didn't know RSD may be affected by it. Hmmmm. I'll have to think about this move!

I'm sorry about your fingers spasming. My hand curled up one time after I had to move to a new place, then had no one to help with my dishes, etc, so I think I over did it. But I kept doing gentle exercises to straighten them out, and eventually it stopped. I hope that's all you have to do.

Have a great weekend!

Denise
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