Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-07-2007, 11:33 AM #1
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Originally Posted by Denise G View Post
Hi jo55 (Hope I'm doing this right!)

I also would like to know if anyone else has worse pain at night on a regular basis. I mean, the very WORST thing for me is to have cool air blow on my right arm or neck anytime day or night. I usually go into horrible pain then. But then, even on days when my pain is "calmer" and bearable, as soon as I get into bed (almost) the pain in both arms and hands worsens.

No doctor answers me when I ask if this is the RSD or not.

I'm so glad to fing this site! I haven't had ANYONE who has this to talk to or ask questions to "compare".
Hey there!

To make a long story short hubby has had RSD in leg since 1995 - After Ulnar Nerve transposition (work related injury - both arms) He developed RSD in his right arm (first surgery).

After developing the ulnar nerve damage he started having cramping, and where his arms would curl up at night (or when he fell asleep) in a protective mode, his hands would claw up too and we have to massage them to get them to "open up" and start working again...I'm wondering if your pain at night has something to do with your ulnar nerve?
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Old 01-07-2007, 07:57 PM #2
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Originally Posted by HubbyWithRSD View Post
Hey there!

..I'm wondering if your pain at night has something to do with your ulnar nerve?

Hi "HubbyWithRSD",

I'm glad your Hubby has such a caring "Wifey"! My heart goes out to him!

Yes, you're very perceptive. I do have ulnar nerve neuropathy due to entrapment. But my chiropractor always "tweeks" my elbow and must be releasing it.

I'M TERRIFIED OF GETTING ANY SURGERIES!

I also have 3 torn tendons in my shoulder that they say I need surgery for, but my WONDERFUL, GIFTED, CHIROPRACTOR also keeps my shoulder loosened up.

So I feel blessed that I've been able to get some help w/o surgery.

But were you saying that the elbow nerve entrapment gets worse at night?
I know torn rotator cuffs hurts worse at night, but since getting so much Chiro help my shoulder is much better. But still the rest of my arms and hands get soooo painful every night.

Please tell me why you think this! I really appreciate it!

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Old 01-07-2007, 10:32 PM #3
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Default Ulnar Nerve

Hey there! Just got back from work so I'm back to my other job...here...

I'm not exactly sure why he has the cramping/clawing etc at night - I think that because his body is relaxed, it goes into protective mode and this is why it happens. As far as preventing it from happening - We've found that with a LOOSE brace - One that is firm, yet flexible, yet also restrains, or prevents it from curling up helps with the pain the next morning and helps him to sleep through the night. (Well...a little more then before...)

That of course is with his left arm. The right he had the ulnar nerve transposition and then developed the RSD in - That arm (the right) still curls at the wrist (as he needs carpel tunnel surgery) but right now there is nothing we can do about that. His Doc says that until the RSD is under control they will do no further surgeries...

You were saying your chiro has helped with the nerve entrapment and moving the nerve back to where it belongs? I'm wondering if this might be an option for him - Although....they figure the casing around the nerve is crushed at the elbow.....I'm gonna have to ask his doc about that or a local chiro - see if it can be of some benefit to him. Thanks for the heads up though! Might be an option for us.
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