Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-09-2007, 11:58 AM #1
Michael C Michael C is offline
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Hi Denise. Thanks for the reply about my sleep question. Including myself, some I have talked to that are long sufferers have experienced a period that the pain became less severe. Remission, I've read about but most all of them were caused by a treatment such as ketamine. My period of less RSD pain was really controlled by my meds. Maybe the way you can tell, is miss a dose of meds, if you are O.K. go from there. If I'm two hours late taking my meds I become very ill.

the BEST to you Denise...Michael
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Old 01-09-2007, 01:39 PM #2
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Hand clawing is often associated with Thoracic Outlet Syndrome also.
Some with TOS were mis dx'd with ulnar or carpal tunnel {or other tendinitis injuries} and after those surgeries they still had sx - because the real injury/compression is up in the brachial plexus area of the neck.

HubbyWithRSD,
does he have a tight neck and or neck and shoulder pain along with the other symptoms of ulnar and carpal?
there is also whats called a double crush and triple crush - where there is a compression at the BP, the ulnar and the carpal.

Just wanted to mention this in case you haven't heard of it before.
What was his work injury?

We have a Thoracic Outlet Forum here also.
many do have RSD with the TOS and work comp claims.

if you think you might have TOS we do have many threads on self care and "helps" and meds.
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Old 01-09-2007, 02:01 PM #3
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Vanessa,
I live in Colorado. The weather does effect me here. When my sister died and went back to Ky. for the funeral I didn't hurt as bad there. It might have been just the time of the year though. We don't have many Kentuckian's on here with RSD to know.

The hot weather here bothers me more then the cold. I am worse in the summer months then I am in the winter. We have no humidity here in the summer months so I like that part but it's just hot weather that gets to me and that might be anywhere I am at.

Jo, I figured those fingers spasming was from TOS. I didn't have it after I had my surgery until I fell really hard on that side and messed myself up again. I am still not dealing with most of the TOS symptoms on the right side though. I don't have the numbness and tingling nor the pain except from overuse and of course I am right handed.

I actually know that I need a redo on the right side but it's just not on my agenda for a long time. I spent a year getting well from that surgery and it's too rough for me to want to go through it again at this point. My left side also needs it but again it's going to wait. I have a lot of mine calmed down through therapy and triggerpoint injections so if I can keep from having that surgery for a long time, I'm happy.

Ada
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