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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Magnate
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Hi I am sorry you are in extra pain. Me and cold are horrid aka why I moved to FL. I wish I had more advice other then warm baths and micro fleece. I mean when I was in MI I had microfleece everything from sheets to pj's. I don't get a flu shot. The reason being pre rsd/pn I had the flu every month with a fever for I would say 3 years. It would clear up to come back with a fever a few weeks later. No clue why. Anyhow I got PN and RSD 2.5 years ago and since then have had the flu 1 time so I guess that is why a No for me. Everyone is different and I think there is no right or wrong and just depends on that person. Hang in there and feel better
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#2 | |||
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Magnate
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Thanks for the help on this. It's only suppose to get to 57 today here. They are calling for snow in some areas of Colorado today. Usually we don't see any here until around Halloween.
What I have noticed about my leg coldness and pain is the only way I can get them to warm up at all is to use the heat. Extra clothes doesn't work. I am going to put my electric blanket on the bed this week. I think we are going to have a early winter. I noticed my legs are weaker then they use to be also. As far as the flu shots Ali, the first year I got one I still got sick with a cold but after the first year, I did ok with them. We already have H1N1 in the schools here so I think they want to get the regular flu shots out of the way so when the shots for it comes in, they can deal with them. They have cases in 2 high schools in this area, including the one the boys go to. Hope, flip flops in December? Can't do that here. Ada |
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#3 | ||
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Senior Member
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Hi Ada,
I saw my GP today, and at his urging I got a flu shot. He wants me to come back in for the H1N1 as soon as it is available. He considers chronic pain patients to be at high risk for both the regular and the swine flu. I do have some pain where I received the injection. But what I am a little more concerned about is the back of my hand where I have had all my infusions and IV's for my blocks - my left hand. Its been really painful around the area where the needle was inserted last week for my Lidocaine infusion the last few days, my infusion was on Wed or Thurs. It always something...I'm glad it's bedtime!! Have a good evening everyone. XOXOX Sandy |
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#4 | |||
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Member
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Quote:
I think your doctor is right, a flu shot would be prudent for most of us with compromised health but I'm more afraid of the unknown side effects since I've had such terrible reactions to seemly safe drugs. I guess I'm the poster girl for those rare side effects on endless list of pages of disclosures. We all have to measure our risk levels and act accordingly. Since I don't have kids I'm a little bit more isolated but who ever really knows. I wish there was more information on the safety of the new H1N1, we are still behind here in Canada with it's release. Can you imagine the Canadian government sent an anti-flu kit to an Inuit community in the North that had been badly affected last year by the swine flu, it included body bags. People were shocked and very disappointed to be treated that way. It was a major political gaff and apologies could not come out fast enough. MsL |
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#5 | ||
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Member
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For the last few years, I have been going to a pediatrician's office and getting the nasal mist version of the flu shot. Does the same thing, but without the needle stick. Talk to your doc about setting you up with a pediatrician willing to work with you (I'm 27.) Always the oldest patient in the waiting room. haha
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