Hi All, Just wanted to update you on the doctors visit yesterday. It took longer for me to get into the car here at home than I was actually there. A quick pill count, & nothing was discussed & that was it. Wait at the front counter for my new scripts, a time for the appointment next month & that was it. The thing that I dont like about this doctor is there is NEVER anytime to ask questions or talk about anything & youre out the door. You dont see him---you see his associates & they dont know anything at all. This makes the 8th month that Ive been going there & Ive only see the doctor 3 times & all 3 times he was trying to shove that SCS down my throat. I guess that he figures that since I showed his shrink the documentation about it that Im not worth his "precious" time so he pawns me off on his staff who are not quailifed to take care of my animals let alone a person. Im sure that its going to stay that way until I agree to have that thing---which Im not, so I probably wont be graced with "presence" until I do. He overbooks his time ---Im sure for the money--because nothing else matters to him but dollar signs & this is where Im stuck until I can find someone else who takes my insurance. Heck of a place to be, but atleast I have one pain med that works---sure would be nice if I could get the perocet strengthened--that would be better than what I have now. Its supposed to rain today & thats just going to have me in my hospital bed all day in extreme pain.
Really hate rainy weather. I hope that you are having a good day---I know that its too early to tell that yet or not but. Well thats all I know for now. Hope to hear from you soon. On another subject---can anyone tell me how to add albums to my page---I would really appreciate it.
Thanks.
Janet

Hi there rsdfree, I sent you a message. To access it go to the top right of any page and you will see your user name. Click on that to open your own home page.

Morning all, I was just wondering if I upset any of you. The reason why Im asking is because I havent heard from anyone. I really hope that Ive not said something that was out of line or anything like that. Finding this site has been a lifesaver for me & I really look forward to all your wisdom. When it comes to this disease I feel like a rookie compared to all of you. I really hope that Ive not mispoken or upset any of you. I really hope to hear from you soon. Its down right chilly here this morning, I think that winter is on the way. Janet

The forum just seems slow this week. Some people might be having good weather and just enjoying it or busy.

I have been busy this week with taking the boys to get hair cuts, and helping them get ready for Homecoming dance tonight. I swear sometimes I think they don't have parents. They call me for everything.

Today I have to help a friend and then I have to go over and take pictures of the kids tonight and then go pick them up from the dance.

The weather has been cold here of the morning. I have my heat on right now.
It's suppose to get to 70 today though. Not typical for here.

If you made someone mad here, you would know it. LOL You are fine. I just hope you start getting the help you need to start being more painfree.

Keep looking for that right Dr.

Ada

Hi Ada, I want to thank you for answering me---I really appreciate. We havent had the heat on yet---just extra blankets. Ive always been cold, hubby used to ask me when we were sleeping in the same bed---if I had just taken my feet out of the freezer, cause they always felt like ice cubes. Im just really glad that I didnt upset anyone. that makes me feel so much better. I hate to say it but I thought that I knew "alot" about rsd/crps---that is until I came here---then I realized that I didnt know anything compared to ya'll. It sounds like you've got a really busy day. We were 40 degrees this morning---it felt good as long as you were under the blankets. lol lol Im sure not looking forward to winter this year, but then I never do. You would think that as much as my left leg is always burning that it wouldnt feel like it was put in the deep freeze, but it sure does. I cant wear anything on it either, because that causes me extreme pain, so how do you keep a leg warm that feels like its on fire but cold? Sounds strange I know. I havent even looked at weather underground to see what its supposed to be here---that way I will be surprised. lol lol I hope that you have a good day & thanks again for answering me. I hope that you have a warm day. Where exactly are you from because you said that 70 was not normal for you?
I keep hoping that I will find a doctor that actually has a heart & that its in working order so that they will be able to treat the whole pain & not just half of it.
Thanks again,
Janet

Dear TiredofPain,

Hon, you do not upset people. People just get busy or, like me, they retreat and stop posting when their depression, or their back pain [from the computer chair] gets too bad. We have monitors that keep out offensive posting here, so you don't have to worry about it. God Bless You, My Dear, and I hope I have not offended YOU! Caring About Your Feelings ~ billie

Youve not upset my feelings at all.
Hi Billie,
I know how easy it is to be depressed, especially when I hurt really bad---I just want to curl under the covers--as best I can & shut out the world. The computer is right beside my hospital bed or I wouldnt be able to be online at all. Hubby moved it over when I got my bed---which it is easier to post & stuff, so Im really glad that he did that for me. Hubby is from Texas---he grew up in Hitchcock---do you know where that is?? Im really glad that I didnt upset anyone, because this place is the only one that Ive found where people know the kind of pain that Im in constantly---I appreciate you saying that though---it really does mean alot to me. Well Billie, its a high pain day for me because of the rain so Im going to say good night to all & I really hope that someone had a pain free day--they are so far & in between for me. Hope to hear from you again. Sweet dreams to all. Thanks for caring about my feelings--that means alot.
Janet

Hi tiredofPain
The joy of wheels have brought new possibilities to me as well!! I understand your elation and independence that your Jazzy chair has brought you!! Something as minor as going to the mailbox alone is cause for celebration.
I've had my mobility scooter (Go-go Elite made by Pride) for over a month now and an automatic lift that lifts it in and out of the back of my van..(W.C. covered it..after many letters from me and the support of my doctors... it has given me a renewed independence and a way for me to make plans as long as my pain level is tolerable.
Things I've done!!

1. Taken a long "walk" on the bike path along the ocean with my son and daughter who live in Santa Cruz (Cal)
2. A trip to the mall just to ride back and forth on the smooth flooring and look at the store windows and get a coffee..(alone!!!)
3. Gone for a walk along the path at the state park! (oohhh,I had been waiting for this for a long time!
4. Rode the mobility scooter from my car to my Saturday class today and therefore had a tolerable pain level.last week I walk from my car to the class..and paid dearly for that with horrible pain..

I share your joy about your new wheels!! I'm so happy for you! Happy trails!!
Hope4thebest

Hi Hope4thebest,
You are right about having a little independence, I didnt think that I was ever going to get it. I wasnt able to leave my front porch unless I was going to a doctor. The maual chair doesnt get around to well with the gravel driveway or the hilly yard too well but the jazzy sure does. I absolutely LOVE it!!! I dont know if I said anything or not but my insurance wont pay for the lift, so Im unable to take it anywhere around town like the doctors, grocery shopping but I sure would love to be able to do that. Maybe then people wouldnt be so eager to run into me. They dont even say that they're sorry after they do it & wal-mart employee's seem to be the worse. They know that they've run into me because I say "excuse me" & they just go on their merry way. They dont realize the pain they cause me when they do that. I just hope for the day when I can do some of what you have been able to do. Something to look forward too!!! I just wish that I could attach a "cattle prod" to my chair ---maybe then they wouldnt bump into me anymore. lol lol Just something that would let them know that it hurts when they dont look where they are going. Its even bad in the doctors office---where you would think that people would be more careful. Its like my leg sticking out is a neon sign saying "hit me--it doesnt hurt". Yeah right!! Its definitely a whole new world for me right now & it really feels great.
Thanks for the encouraging words & it definitely gives me something to look forward too.
Janet

Hi again, its me again---lol lol
Since Im still a "newbie" here, I was wondering if any of you could tell me how to add albums, picture or an avatar, I just cant figure it out. I would really appreciate it very much. Im surprised that I figured out how to reply to private messages---lol lol . Hope that some one out there is having warmer weather than we are, its just down right cold here. Im unable to wear jeans or anything like that so I get cold rather quickly. I have to wear dresses or my jammies ( atleast they're flannel) & we have to go grocery shopping today. Thats one thing that I just dont enjoy as much as I used to. Look out wal-mart---please dont run into me today. Thanks again---will appreciate any & all help that you can give me. Stay warm.

Janet